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克服糟糕的一天:对东洛杉矶墨西哥裔女性痴呆症护理经历的定性研究

Overcoming a Bad Day: a Qualitative Look into the Dementia Caregiving Experiences of Mexican-Origin Women in East Los Angeles.

作者信息

Guerrero Lourdes R, Mendez-Luck Carolyn A

机构信息

David Geffen School of Medicine at UCLA Medicine, Geriatrics, BOX 951687, 2339 PVUB, Los Angeles, CA, 90095-1687, USA.

College of Public Health & Human Sciences, Oregon State University, 401 Waldo Hall, Corvallis, OR, 97331, USA.

出版信息

J Cross Cult Gerontol. 2019 Dec;34(4):373-384. doi: 10.1007/s10823-019-09373-9.

DOI:10.1007/s10823-019-09373-9
PMID:31134464
Abstract

The number of Latinos with Alzheimer's disease (AD) is projected to more than double by 2030. Yet, the current literature is lagging on Alzheimer's caregiving among Latinos. This study explores how Mexican origin women experience dementia caregiving, and the coping strategies they use to manage their caregiving situations. Nine women were identified as caregivers of a family member with AD or dementia from a larger study on caregiving. Interviews with them were collected and subsequently analyzed using a modified grounded theory approach to reduce the data to identify thematic content. All but one participant described caregiving as "tiring," "wearing," or "hard." They reported suffering from stress, insomnia, nervousness, migraines, and/or depression because of their caregiving experiences. Participants engaged in various coping strategies to help combat the perceived negative consequences of their caregiving experiences. The most commonly reported strategies were various forms of distraction, and meditation or prayer. The Mexican origin women in this study experience faced two types of interpersonal challenges related to dementia caregiving: changes in the care receiver's personality and behaviors, and physical care needs. They engaged in various coping to strategies to address the difficulties of their situation. This study provides formative research for identifying research questions and topics of examination in the future.

摘要

预计到2030年,患有阿尔茨海默病(AD)的拉丁裔人数将增加一倍多。然而,目前关于拉丁裔阿尔茨海默病护理的文献滞后。本研究探讨了墨西哥裔女性如何体验痴呆症护理,以及她们用来应对护理情况的应对策略。在一项关于护理的大型研究中,九名女性被确定为患有AD或痴呆症家庭成员的护理者。收集了对她们的访谈,并随后使用改进的扎根理论方法进行分析,以简化数据以识别主题内容。除一名参与者外,所有参与者都将护理描述为“累人”、“令人疲惫”或“艰难”。她们报告称,由于护理经历,自己遭受着压力、失眠、紧张、偏头痛和/或抑郁。参与者采用了各种应对策略来帮助对抗护理经历带来的负面后果。最常报告的策略是各种形式的分散注意力,以及冥想或祈祷。本研究中的墨西哥裔女性在痴呆症护理方面面临两种人际挑战:受护理者性格和行为的变化,以及身体护理需求。她们采用各种应对策略来应对自身处境的困难。本研究为未来确定研究问题和审查主题提供了形成性研究。

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J Am Geriatr Soc. 2021 Jun;69(6):1539-1547. doi: 10.1111/jgs.17091. Epub 2021 Mar 13.
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Coping Strategies Utilized by Middle-Aged and Older Latino Caregivers of Loved Ones with Alzheimer's Disease and Related Dementia.

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J Gerontol B Psychol Sci Soc Sci. 2016 Sep;71(5):926-35. doi: 10.1093/geronb/gbv083. Epub 2015 Sep 11.
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