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评估在线资源对癌症患者家庭照顾者的适宜性、可读性、质量和有用性。

An evaluation of the suitability, readability, quality, and usefulness of online resources for family caregivers of patients with cancer.

机构信息

St. Mary's Research Centre, 3830 Lacombe Ave, Montreal, QC, H3T 1M5, Canada.

St. Mary's Research Centre, 3830 Lacombe Ave, Montreal, QC, H3T 1M5, Canada; McGill University, Ingram School of Nursing, 680 Sherbrooke West, Montreal, QC, H3A 2M7.

出版信息

Patient Educ Couns. 2019 Oct;102(10):1892-1897. doi: 10.1016/j.pec.2019.05.010. Epub 2019 May 13.

Abstract

OBJECTIVE

Evaluate the suitability, readability, quality, and usefulness of publicly available online resources for cancer caregivers.

METHODS

Resources identified through a Google search and environmental scan were evaluated using the Suitability Assessment of Materials (SAM), an online readability text analysis tool, the DISCERN (quality), and caregivers' unmet needs checklist (usefulness). Descriptive analyses and cluster analysis to identify the group of resources with the highest SAM and DISCERN scores were performed.

RESULTS

55 resources were evaluated. The suitability of 48/55 (87%) resources were categorized as adequate (SAM scores 40-69), with no resources ranking in the superior category (SAM scores > 70%). The readability of 51/55 (93%) resources exceeded 9th grade reading level. The mean quality score as a percentage was 49% (SD 11.5). On average resources addressed 9.9/33 unmet needs (SD = 5.8). A high-quality cluster was identified and included 15 (27%) websites.

CONCLUSION

Online resources for cancer caregivers are not optimal in terms of their suitability, readability, quality, and usefulness. The highest ranked resources include, Cancer Council Australia's booklet, Caring for Someone with Cancer, and the American Cancer Society's webpages, Caregivers and Families.

PRACTICE IMPLICATIONS

Study findings will allow healthcare professionals to better address cancer caregivers' needs by recommending the most optimal resources.

摘要

目的

评估癌症护理人员可用的在线资源的适宜性、可读性、质量和实用性。

方法

通过谷歌搜索和环境扫描确定资源,然后使用材料适宜性评估(SAM)、在线可读性文本分析工具 DISCERN(质量)以及护理人员未满足需求清单(实用性)对其进行评估。对描述性分析和聚类分析进行了执行,以确定 SAM 和 DISCERN 得分最高的资源组。

结果

评估了 55 个资源。48/55(87%)个资源的适宜性被归类为足够(SAM 评分 40-69),没有资源属于优秀类别(SAM 评分>70%)。51/55(93%)个资源的可读性超过 9 年级阅读水平。质量评分的平均值为 49%(SD 11.5)。平均每个资源解决了 9.9/33 个未满足的需求(SD=5.8)。确定了一个高质量的聚类,其中包括 15 个(27%)网站。

结论

癌症护理人员的在线资源在适宜性、可读性、质量和实用性方面都不理想。排名最高的资源包括澳大利亚癌症协会的小册子《照顾癌症患者》和美国癌症协会的网页《护理人员和家庭》。

实践意义

研究结果将使医疗保健专业人员能够通过推荐最合适的资源更好地满足癌症护理人员的需求。

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