孕期对照顾者的支持：对其活动与角色的定性研究
Supporting Caregivers in Pregnancy: A Qualitative Study of Their Activities and Roles.
作者信息
Anders Shilo, Aaron Hannah, Jackson Gretchen Purcell, Novak Laurie L
机构信息
Department of Anesthesiology, Vanderbilt University Medical Center, Nashville, TN, USA.
Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN, USA.
出版信息
J Patient Exp. 2019 Jun;6(2):126-132. doi: 10.1177/2374373518785570. Epub 2018 Jul 16.
BACKGROUND
The significant role of lay caregivers has been explored in chronic and acute illnesses. In pregnancy, caregivers' (eg, the baby's father, friends, and family) roles in promoting the health of the mother and baby are not well understood.
OBJECTIVE
We characterize the activities and roles of pregnancy caregivers and offer opportunities for engaging this important group.
METHOD
We conducted interviews with 29 pregnancy caregivers. Interview transcripts were analyzed inductively, resulting in a coding scheme of actions and roles that pregnancy caregivers perform.
RESULTS
The most common actions and roles included searching for information (97%), accompanying patients to medical appointments (69%), and being a source of emotional support (76%). Identified actions and roles fit a patient work framework, including work types identified by Corbin and Strauss: illness, everyday life, biographical, articulation, and invisible.
CONCLUSION
The patient work framework can be employed to describe the activities and roles of pregnancy caregivers. We have contributed new insights into the experiences of pregnancy caregivers and recommendations for educational and technological interventions.
背景
非专业护理人员在慢性疾病和急性疾病中所起的重要作用已得到研究。在孕期，护理人员（如婴儿的父亲、朋友和家人）在促进母婴健康方面所起的作用尚未得到充分了解。
目的
我们描述了孕期护理人员的活动和角色，并为与这一重要群体互动提供了机会。
方法
我们对29名孕期护理人员进行了访谈。对访谈记录进行归纳分析，得出了孕期护理人员所执行的行动和角色的编码方案。
结果
最常见的行动和角色包括搜索信息（97%）、陪同患者就医（69%）以及提供情感支持（76%）。确定的行动和角色符合患者工作框架，包括Corbin和Strauss确定的工作类型：疾病、日常生活、个人经历、表达和无形工作。
结论
患者工作框架可用于描述孕期护理人员的活动和角色。我们为孕期护理人员的经历提供了新的见解，并为教育和技术干预提出了建议。
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