Huth Hannah B, Skeens Ryan, Anders Shilo, Herzberg Simone, Simpson Christopher, Novak Laurie, Jackson Gretchen P
Indiana University, Bloomington, IN, USA.
Department of Biomedical Informatics, Vanderbilt University, Nashville, TN, USA.
J Patient Exp. 2020 Dec;7(6):1227-1233. doi: 10.1177/2374373520948442. Epub 2020 Aug 14.
With growth in consumer health technologies, patients and caregivers have become increasingly involved in their health and medical care. Such health-related engagement often occurs at home. Pregnancy is a common condition and, for many women, their first exposure to health management practices. This study examined how pregnant women and caregivers managed health in their homes. Participants completed sociodemographic surveys and semi-structured interviews about living situation, information needs, and technology use. Using an iterative, inductive coding approach, we identified themes about health management, including the physical home, help at home, community, the virtual home, and biggest concerns. Most expectant mothers encountered everyday problems with mobility and household management. Pregnant women desired more assistance from caregivers, who often did not know how to help. Caregivers who provided help took on new roles. Many expectant families did not trust advice found online. Over half of expectant families had biggest concerns that involved the home.
随着消费者健康技术的发展,患者和护理人员越来越多地参与到自身的健康和医疗护理中。这种与健康相关的参与通常发生在家里。怀孕是一种常见情况,对许多女性来说,这是她们首次接触健康管理实践。本研究调查了孕妇和护理人员如何在家中管理健康。参与者完成了关于生活状况、信息需求和技术使用的社会人口学调查及半结构化访谈。我们采用迭代归纳编码方法,确定了有关健康管理的主题,包括实体家庭、家庭帮助、社区、虚拟家庭以及最大担忧。大多数准妈妈在行动和家务管理方面遇到日常问题。孕妇希望护理人员提供更多帮助,而护理人员往往不知道如何提供帮助。提供帮助的护理人员承担了新角色。许多准家庭不信任网上找到的建议。超过一半的准家庭最大的担忧涉及家庭。