School of Population and Global Health, The University of Western Australia, 35 Stirling Highway, Perth, Western Australia, 6009, Australia.
Medical School, The University of Western Australia, 35 Stirling Highway, Perth, WA, 6009, Australia.
BMC Palliat Care. 2019 Jun 25;18(1):51. doi: 10.1186/s12904-019-0435-4.
Few studies have specifically assessed the scope, nature and challenges of palliative and end-of-life care in rural general practice. These knowledge gaps limit the development of evidence-based policies and services for patients in the last months of life. This study aimed to explore the perspectives of general practitioners (GPs) and other stakeholders on rural GPs' involvement and challenges in providing palliative and end-of-life care in regional Australia.
A qualitative study involving five focus groups with 26 GPs based in rural/regional Western Australia together with 15 individual telephone interviews with four GPs and 11 other stakeholders involved in end-of-life care across Australia.
The rural GPs' central role in end-of-life care was recognized by the majority of participants but multiple challenges were also identified. Some challenges were comparable to those found in urban settings but others were more pronounced, including resource limitations and lack of training. Inappropriate payment models discouraged GPs' involvement in some aspects of end-of-life care, such as case conferences and home visits. Compared to GPs in urban settings, those in rural/regional communities often reported closer doctor-patient relationships and better care integration and collaboration. These positive aspects of care could be further developed to enhance service provision. Our study highlighted the importance of regular interactions with other professionals and patients in providing end-of-life care, but many GPs and other stakeholders found such interactions more challenging than the more "technical" aspects of care.
Rural/regional GPs appear to be disproportionately affected by inappropriate payment models and limited resources, but may benefit from closer doctor-patient relationships and better care integration and collaboration relative to urban GPs. Systematic collection of empirical data on GP management at end-of-life is required to build on these strengths and address the challenges.
很少有研究专门评估农村全科医生在姑息治疗和临终关怀方面的范围、性质和挑战。这些知识空白限制了为生命最后几个月的患者制定基于证据的政策和服务。本研究旨在探讨全科医生(GP)和其他利益相关者对澳大利亚农村地区 GP 参与和提供姑息治疗和临终关怀所面临的挑战的看法。
这是一项定性研究,涉及在澳大利亚西部农村/地区的 26 名 GP 参与的 5 个焦点小组,以及与参与澳大利亚各地临终关怀的 4 名 GP 和 11 名其他利益相关者进行的 15 次单独电话访谈。
大多数参与者承认农村 GP 在临终关怀中的核心作用,但也发现了多种挑战。一些挑战与城市环境中发现的类似,但其他挑战更为突出,包括资源限制和缺乏培训。不适当的支付模式阻碍了 GP 参与临终关怀的某些方面,例如病例会议和家访。与城市环境中的 GP 相比,农村/地区社区的 GP 通常报告与患者的关系更密切,并且更好地整合和协作提供护理。可以进一步发展这些积极的护理方面,以增强服务提供。我们的研究强调了与其他专业人员和患者定期互动在提供临终关怀方面的重要性,但许多 GP 和其他利益相关者发现这种互动比护理的更“技术性”方面更具挑战性。
农村/地区的 GP 似乎受到不适当的支付模式和有限资源的不成比例影响,但相对于城市 GP,他们可能受益于更密切的医患关系以及更好的护理整合和协作。需要系统地收集有关 GP 在临终关怀方面管理的经验数据,以利用这些优势并应对挑战。