Oncology Consumer Health Librarian, Samuel J. Wood Library & C.V. Starr Biomedical Information Center, Weill Cornell Medical College, New York, NY,
Clinical and Systems Librarian, Samuel J. Wood Library & C.V. Starr Biomedical Information Center, Weill Cornell Medical College, New York, NY,
J Med Libr Assoc. 2019 Jul;107(3):314-322. doi: 10.5195/jmla.2019.652. Epub 2019 Jul 1.
The goal of this scoping review was to collect data on patient- and family-centered care (PFCC) programs and initiatives that have included the direct involvement of librarians and information professionals to determine how librarians are involved in PFCC and highlight opportunities for librarians to support PFCC programs.
Systematic literature searches were conducted in seven scholarly databases in the information, medical, and social sciences. Studies were included if they (1) described initiatives presented explicitly as PFCC programs and (2) involved an information professional or librarian in the PFCC initiative or program. Based on the definition of PFCC provided by the Institute for Patient- and Family-Centered Care, the authors developed a custom code sheet to organize data elements into PFCC categories or initiatives and outcomes. Other extracted data elements included how the information professional became involved in the program and a narrative description of the initiatives or programs.
All included studies (n=12) identified patient education or information-sharing as an integral component of their PFCC initiatives. Librarians were noted to contribute to shared decision-making through direct patient consultation, provision of health literacy education, and information delivery to both provider and patient with the goal of fostering collaborative communication.
The synthesis of available evidence to date suggests that librarians and information professionals should focus on patient education and information-sharing to support both patients or caregivers and clinical staff. The burgeoning efforts in participatory care and inclusion of patients in the decision-making process pose a unique opportunity for librarians and information professionals to offer more personalized information services.
本次范围综述的目的是收集有关以患者和家庭为中心的护理（PFCC）计划和举措的资料，这些计划和举措直接涉及图书馆员和信息专业人员，以确定图书馆员如何参与 PFCC 并强调图书馆员支持 PFCC 计划的机会。
在信息、医学和社会科学领域的七个学术数据库中进行了系统文献检索。如果研究（1）描述了明确作为 PFCC 计划提出的举措，并且（2）在 PFCC 举措或计划中涉及信息专业人员或图书馆员，则将其纳入研究。根据患者和家庭为中心的护理研究所提供的 PFCC 定义，作者制定了自定义代码表，将数据元素组织到 PFCC 类别或举措和结果中。提取的其他数据元素包括信息专业人员如何参与该计划以及对举措或计划的叙述性描述。
所有纳入的研究（n=12）都将患者教育或信息共享确定为其 PFCC 举措的一个组成部分。图书馆员通过直接与患者协商、提供健康素养教育以及向提供者和患者提供信息，为共同决策做出了贡献，目的是促进协作沟通。
迄今为止对现有证据的综合表明，图书馆员和信息专业人员应专注于患者教育和信息共享，以支持患者或护理人员和临床工作人员。参与式护理的兴起以及将患者纳入决策过程的努力为图书馆员和信息专业人员提供了提供更个性化信息服务的独特机会。
