Okide Charity Chinelo, Eseadi Chiedu, Koledoye Uzoamaka Lucynda, Mbagwu Felicia, Ekwealor Nwakaego Ebele, Okeke Nkechi Mercy, Osilike Chioma, Okeke Polycarp M D
Department of Adult Education and Extra-Mural Studies, University of Nigeria, Nsukka, Enugu State, Nigeria.
Department of Educational Foundations, University of Nigeria, Nsukka, Enugu State, Nigeria.
J Int Med Res. 2020 Jan;48(1):300060519862101. doi: 10.1177/0300060519862101. Epub 2019 Jul 16.
Community-dwelling adults are members of society residing in community settings. Community-based adult education is designed for local residents and groups, to enable them to improve their quality of life within their community. Hemophilia is a bleeding disorder that can be inherited or acquired. World Hemophilia Day 2018 helped to raise awareness about the importance of sharing knowledge and the experience of hemophilia, as well as to improve access to care and treatment among people with this bleeding disorder. We used the documentary method of research, which has been adopted in recent review articles, to collect and analyze the findings of published literature on hemophilia. Our results showed that community-dwelling adults with hemophilia have concerns that merit the attention of government and non-governmental agencies. Some challenges faced by many community-dwelling adults with hemophilia include the cost of treatment and employment challenges. Herein, we discuss the implications for community-based health education and nursing with respect to patient care, adult education, nursing education, management, research, and policy. Finally, the authors note that sustainable efforts are needed in the provision of local, national and international leadership and educational resources to improve and sustain health care for community-dwelling adults with hemophilia.
社区居住成年人是居住在社区环境中的社会成员。基于社区的成人教育是为当地居民和团体设计的，以使他们能够在自己的社区内提高生活质量。血友病是一种可遗传或后天获得的出血性疾病。2018年世界血友病日有助于提高人们对分享血友病知识和经验重要性的认识，并改善患有这种出血性疾病的人群获得护理和治疗的机会。我们采用了近期综述文章中采用的文献研究方法，来收集和分析已发表的关于血友病的文献研究结果。我们的结果表明，社区居住的成年血友病患者有一些值得政府和非政府机构关注的问题。许多社区居住的成年血友病患者面临的一些挑战包括治疗费用和就业挑战。在此，我们讨论了基于社区的健康教育和护理在患者护理、成人教育、护理教育、管理、研究和政策方面的意义。最后，作者指出，需要在地方、国家和国际层面持续努力提供领导力和教育资源，以改善和维持对社区居住的成年血友病患者的医疗保健。
