医疗保健专业人员的研究数据管理
Research Data Stewardship for Healthcare Professionals
作者信息
Jansen Paula, van den Berg Linda, van Overveld Petra, Boiten Jan-Willem
机构信息
Research Office, UMC Utrecht, Utrecht, The Netherlands
Washoe Life Science Communications, Rhoon, The Netherlands
Research data stewardship refers to the long-term and sustainable care for research data, from study design to data collection, analysis, storage, and sharing. It involves all activities that are required to ensure that digital research data is findable, accessible, interoperable, and reusable (FAIR) in the long term, including data management, archiving, and reuse by third parties. This chapter provides an overview of the aspects of FAIR data stewardship that you should consider when you are involved in clinical research.
研究数据管理是指从研究设计到数据收集、分析、存储和共享，对研究数据进行长期且可持续的照护。它涵盖了确保数字研究数据在长期内可查找、可访问、可互操作且可重复使用（FAIR）所需的所有活动，包括数据管理、存档以及第三方的再利用。本章概述了你在参与临床研究时应考虑的FAIR数据管理的各个方面。
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