Albayrak Ilknur, Biber Ayten, Çalışkan Ahmet, Levendoglu Funda
1 Department of Physical Medicine and Rehabilitation, Selcuk University Medical Faculty, Konya, Turkey.
2 Department of Physical Medicine and Rehabilitation, Erzurum Education and Research Hospital, Erzurum, Turkey.
J Child Health Care. 2019 Sep;23(3):483-494. doi: 10.1177/1367493519864751. Epub 2019 Jul 18.
The aim of this study were to evaluate pain, care burden, depression level, sleep quality, fatigue and quality of life (QoL) among a group of mothers of children with cerebral palsy (CP) and to compare their results with a group of healthy controls. The study involved 101 mothers who had children with CP and 67 mothers who had a healthy child as the control group. Pain, care burden, depression level, sleep quality, fatigue and QoL of all the participants were evaluated by the numerical rating scale, the Zarit care burden scale (ZCBS), the beck depression inventory (BDI), the Pittsburgh sleep quality index (PSQI), the checklist individual strength (CIS) and the short form-36 (SF-36), respectively. Numerical rating scale value was 3.57 ± 2.96 in the patient group. When the two groups were compared, the CP group showed higher scores for ZCBS, BDI, PSQI, total CIS and SF-36 subscales of general health and vitality whereas the scores for role physical, role emotional, mental health and mental component summary were found to be lower in the patients, compared to the control group. Reducing caregiving burden of the mothers' by other family members and increasing psychosocial supports may help improve the mother's health status.
本研究的目的是评估一组脑瘫患儿母亲的疼痛、护理负担、抑郁水平、睡眠质量、疲劳及生活质量（QoL），并将她们的结果与一组健康对照者进行比较。该研究纳入了101名有脑瘫患儿的母亲和67名有健康孩子的母亲作为对照组。所有参与者的疼痛、护理负担、抑郁水平、睡眠质量、疲劳及生活质量分别通过数字评分量表、扎里特护理负担量表（ZCBS）、贝克抑郁量表（BDI）、匹兹堡睡眠质量指数（PSQI）、个人力量清单（CIS）及简明健康调查量表（SF-36）进行评估。患者组的数字评分量表值为3.57±2.96。两组比较时，脑瘫组在ZCBS、BDI、PSQI、CIS总分及SF-36的总体健康和活力分量表上得分更高，而与对照组相比，患者在角色身体、角色情感、心理健康及心理成分总结方面的得分更低。其他家庭成员减轻母亲的护理负担并增加社会心理支持可能有助于改善母亲的健康状况。
