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痉挛型脑瘫患儿的生活质量与母亲的负担:基于地形学分类的视角

Child's quality of life and mother's burden in spastic cerebral palsy: a topographical classification perspective.

作者信息

Ozkan Yasemin

机构信息

Dumlupinar University Medical School, Department of Physical Medicine and Rehabilitation, Kutahya, Turkey.

出版信息

J Int Med Res. 2018 Aug;46(8):3131-3137. doi: 10.1177/0300060518772758. Epub 2018 Apr 24.

Abstract

Objective To evaluate the child's quality of life (QoL), mother's burden, and correlation between these parameters in children with spastic cerebral palsy (CP). Methods Children with spastic CP (n = 120; mean age: 8.64 ± 3.45 years; range: 2-17 years) were classified into three groups of diplegia, hemiplegia, and quadriplegia based on topographical classification. The Pediatric Quality of Life Inventory and Zarit Burden Interview were used to determine the child's QoL and the mother's burden scores, respectively. Results Children's QoL scores were lower in the quadriplegia group than in the hemiplegia and diplegia groups (except for emotional functioning). The mother's burden was lower in the quadriplegia group than in the other groups, and it was lower in the diplegia group than in the hemiplegia group. Increases in children's QoL scores were associated with decreases in the mothers' burden scores. Conclusion Children's QoL is associated with the mother's burden in spastic CP, and quadriplegic children and their mothers are more affected. The burden of mothers ranked the highest in the quadriplegia group, followed by the diplegia group and the hemiplegia group. Topographical classification is a good indicator for children's QoL and the mother's burden in spastic CP.

摘要

目的 评估痉挛型脑性瘫痪(CP)患儿的生活质量(QoL)、母亲的负担以及这些参数之间的相关性。方法 将痉挛型CP患儿(n = 120;平均年龄:8.64±3.45岁;范围:2 - 17岁)根据地形学分类分为双瘫、偏瘫和四肢瘫三组。分别使用儿童生活质量量表和 Zarit 负担访谈量表来确定患儿的QoL和母亲的负担得分。结果 四肢瘫组患儿的QoL得分低于偏瘫组和双瘫组(情感功能除外)。四肢瘫组母亲的负担低于其他组,双瘫组母亲的负担低于偏瘫组。患儿QoL得分的增加与母亲负担得分的降低相关。结论 在痉挛型CP中,患儿的QoL与母亲的负担相关,四肢瘫患儿及其母亲受影响更大。母亲的负担在四肢瘫组中最高,其次是双瘫组和偏瘫组。地形学分类是痉挛型CP患儿QoL和母亲负担的良好指标。

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