School of Social Sciences, Leeds Beckett University, Leeds, UK.
School of Health and Community Studies, Leeds Beckett University, Leeds, UK.
Psychol Health. 2020 Jan;35(1):36-69. doi: 10.1080/08870446.2019.1626125. Epub 2019 Jul 19.
Describe and synthesise existing published research on the experiences and support needs of informal caregivers of people with multimorbidity. Scoping literature review. Primary database and secondary searches for qualitative and/or quantitative English-language research with an explicit focus on informal carers of people with multimorbidity (no date restrictions). Quality appraisal of included papers. Thematic analysis to identify key themes in the findings of included papers. Thirty-four papers (reporting on 27 studies) were eligible for inclusion, the majority of which were rated good quality, and almost half of which were published from 2015 onwards. The review highlights common difficulties for informal carers of people with multiple chronic illnesses, including practical challenges related to managing multiple health care teams, appointments, medications and side effects, and psychosocial challenges including high levels of psychological symptomatology and reduced social connectedness. Current gaps in the literature include very few studies of interventions which may help support this caregiver group. Interest in this research area is burgeoning. Future work might fruitfully examine the potential benefits of audio-recorded health care consultations, and digitally delivered psychosocial interventions such as online peer support forums, for supporting and enhancing the caring activities and wellbeing of this caregiver group.
描述并综合现有关于多种疾病患者的非专业照护者的经验和支持需求的已发表研究。范围性文献综述。对定性和/或定量的英文研究进行主要数据库和二次搜索，这些研究明确关注多种疾病患者的非专业照护者（无时间限制）。对纳入文献进行质量评估。对纳入文献的研究结果进行主题分析，以确定关键主题。有 34 篇论文（报告了 27 项研究）符合纳入标准，其中大多数被评为高质量，近一半的论文发表于 2015 年以后。综述强调了多重慢性疾病患者的非专业照护者常见的困难，包括与管理多个医疗团队、预约、药物和副作用相关的实际挑战，以及包括高水平心理症状和社会联系减少在内的心理社会挑战。文献中的当前空白包括很少有研究干预措施可以帮助支持这个照顾者群体。对该研究领域的兴趣正在蓬勃发展。未来的研究可能会有成效地研究音频记录的医疗保健咨询以及在线peer 支持论坛等数字化心理社会干预措施的潜在益处，以支持和增强这个照顾者群体的照顾活动和幸福感。
