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What factors determine the choice of public engagement undertaken by health technology assessment decision-making organizations?哪些因素决定了卫生技术评估决策组织所采取的公众参与方式?
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Which public and why deliberate?--A scoping review of public deliberation in public health and health policy research.哪些公众以及为何是刻意选择的?——对公共卫生与卫生政策研究中公众参与审议的范围界定审查
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Examining the ethical and social issues of health technology design through the public appraisal of prospective scenarios: a study protocol describing a multimedia-based deliberative method.通过对未来情景的公众评估审视健康技术设计中的伦理和社会问题:一项描述基于多媒体的审议方法的研究方案
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From 'trust us' to participatory governance: Deliberative publics and science policy.从“信任我们”到参与式治理:协商性公众与科学政策。
Public Underst Sci. 2014 Jan;23(1):48-52. doi: 10.1177/0963662512472160.
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Eliciting ethical and social values in health technology assessment: A participatory approach.健康技术评估中伦理和社会价值的引出:一种参与式方法。
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Introducing patients' and the public's perspectives to health technology assessment: A systematic review of international experiences.将患者和公众的观点引入健康技术评估:国际经验的系统评价。
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Patients' perspectives in health technology assessment: a route to robust evidence and fair deliberation.患者在健康技术评估中的观点:获得稳健证据和公平审议的途径。
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作为公众代表还是潜在用户进行审议?两种应贯穿于健康创新政策的互补视角。

Deliberating as a Public Representative or as a Potential User? Two Complementary Perspectives that Should Inform Health Innovation Policy.

作者信息

Lehoux Pascale, Proulx Sébastien

机构信息

Full Professor, Department of Health Management, Evaluation and Policy, University of Montreal, Institute of Public Health Research of University of Montreal (IRSPUM), Montreal, QC.

Assistant Professor, Department of Design, The Ohio State University, Columbus, Ohio.

出版信息

Healthc Policy. 2019 May;14(4):28-38. doi: 10.12927/hcpol.2019.25858.

DOI:10.12927/hcpol.2019.25858
PMID:31322112
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7008683/
Abstract

While public involvement in health policy is gaining traction around the world, deciding whether practitioners of public involvement should encourage participants to deliberate from a personal or a collective perspective remains an object of contention. Drawing on an empirical study, the aim of this article is to generate methodological insights into these two perspectives. Our qualitative analyses illustrate how members of the public contributed differently to deliberations about the value of health innovations by alternatively sharing views as public representatives and as potential users. When engaging as public representatives, participants raised important collective concerns, and, when engaging as potential users, participants brought concrete details and contextual nuances to the group exchanges. Because these perspectives entail different yet mutually challenging ways of appraising health innovations, public engagement practitioners should foster both personal and collective perspectives.

摘要

虽然公众参与卫生政策在全球范围内越来越受到关注,但决定公众参与的从业者是否应鼓励参与者从个人或集体角度进行审议,仍是一个有争议的问题。基于一项实证研究,本文旨在对这两种视角产生方法上的见解。我们的定性分析表明,公众成员作为公共代表和潜在用户交替分享观点时,对健康创新价值的审议贡献方式有所不同。当作为公共代表参与时,参与者提出了重要的集体关切;而当作为潜在用户参与时,参与者为小组交流带来了具体细节和背景细微差别。由于这些视角需要不同但相互挑战的方式来评估健康创新,公众参与从业者应同时促进个人和集体视角。