Medical School, The Australian National University, Canberra, Australia.
Centre for Health and Medical Research, ACT Health, Canberra, Australia.
Health Promot Int. 2020 Aug 1;35(4):752-761. doi: 10.1093/heapro/daz070.
Current mental health policy requires consumer involvement in all levels of health service management (i.e. planning, implementation, delivery and evaluation). However, current models often limit consumers to 'representation' roles that are criticized for silencing consumer views. This study compares understandings of consumer representatives' and health professionals' participation in decision-making processes in the mental health sector in Australia. Story completion methods were employed, with 34 participants (21 consumers, 8 health professionals and 5 people identifying both as consumer and health professional) completing a story stem about either a consumer representative or a health professional changing a committee meeting agenda. Using a thematic approach, three overarching themes were developed: how consumer representative roles remain unvalued, how such lack of value translates to not achieving co-production and how consumer representative roles can be better supported through allyship or subversion against organizational cultural norms. Findings suggest that organizational cultural norms in health settings need to be more inclusive of consumers to maximize the benefits of partnerships and fulfil policy expectations. Two methods for greater empowerment of consumers working in mental health are through allyship with non-consumer health professionals who support the goals of the consumer movement, and subversion of current practices.
当前的心理健康政策要求消费者参与卫生服务管理的各个层面(即规划、实施、提供和评估)。然而,当前的模式往往将消费者限制在“代表”角色,这些角色因压制消费者意见而受到批评。本研究比较了澳大利亚精神卫生部门消费者代表和卫生专业人员对参与决策过程的理解。采用故事完成方法,有 34 名参与者(21 名消费者、8 名卫生专业人员和 5 名既是消费者又是卫生专业人员的人)完成了一个关于消费者代表或卫生专业人员改变委员会会议议程的故事梗概。通过主题方法,制定了三个总体主题:消费者代表角色如何仍然不受重视,这种缺乏价值如何转化为无法实现共同生产,以及如何通过与非消费者卫生专业人员的结盟或颠覆组织文化规范来更好地支持消费者代表角色。研究结果表明,卫生机构中的组织文化规范需要更加包容消费者,以最大限度地发挥伙伴关系的好处并满足政策期望。两种增强在精神卫生领域工作的消费者权力的方法是与支持消费者运动目标的非消费者卫生专业人员结盟,以及颠覆当前的做法。