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父亲参与照顾患糖尿病孩子的程度及其在评估患糖尿病孩子母亲的家庭功能方面的影响。

The degree of fathers' involvement in taking care of children with diabetesand its implications in family functioning in the assessment of diabetic children's mothers.

作者信息

Zamarlik Monika Anna

机构信息

Faculty of Health Sciences, Jagiellonian University Medical College, Krakow, Poland.

出版信息

Pediatr Endocrinol Diabetes Metab. 2019;25(2):60-66. doi: 10.5114/pedm.2019.85815.

Abstract

INTRODUCTION

Children's type 1 diabetes is one of the most mentally aggravating chronic diseases for the patient and his/her parents. The disease disturbs relationships in the family, disrupts communication, and enforces a change in the organisation of daily life.

THE AIM OF THE STUDY

The aim of the study was to gather opinions about fathers' involvement in taking care of children with type 1 diabetes. Opinions were stated by mothers of sick children regarding managing of diabetes and its impact on the functioning and relationships of the family.

MATERIAL AND METHODS

The survey (conducted in 2017) was in the form of a questionnaire, which was filled in by 459 mothers. The average duration of the child's illness was 3.8 years, (SD 2.95, Me 3), the average age of the child was about 8.9 years (SD 3.96, Me 8.5).

RESULTS

83% of the respondents indicated that the child's disease was a huge psychological burden for them and that it was the mother who mostly took care of the sick child. 38.8% of mothers could count on the support of other family members. Because of the need to take care of the child, 58.8% of them were not professionally active, and 24.2%, despite their professional activity, were the only ones in the family who controlled the diabetes. In 15.3% of families, the father did not perform any activities related to the child's diabetes. 33.8% estimated that the child's disease worsened the situation of the family, and in 4.4% it caused its disintegration. Only 18.1% of mothers declared that the father was able to look after the child with diabetes by himself.

CONCLUSIONS

It is necessary to support families affected by diabetes. Their personal and social skills should be developed so that they can cope with chronic disease and the duties related to managing diabetes. The responsibility should be shared by both parents.

摘要

引言

儿童1型糖尿病是对患者及其父母而言精神上最令人苦恼的慢性病之一。该疾病扰乱家庭关系,破坏沟通,并迫使日常生活安排发生改变。

研究目的

本研究的目的是收集关于父亲参与照顾1型糖尿病患儿的意见。患病儿童的母亲们就糖尿病的管理及其对家庭功能和关系的影响发表了意见。

材料与方法

该调查(于2017年进行)采用问卷形式,由459位母亲填写。患儿的平均患病时长为3.8年(标准差2.95,中位数3),儿童的平均年龄约为8.9岁(标准差3.96,中位数8.5)。

结果

83%的受访者表示孩子的疾病对她们来说是巨大的心理负担,且主要是母亲照顾患病儿童。38.8%的母亲能够得到其他家庭成员的支持。由于需要照顾孩子,58.8%的母亲没有职业活动,24.2%的母亲尽管有职业活动,但却是家中唯一管理糖尿病的人。在15.3%的家庭中,父亲没有开展任何与孩子糖尿病相关的活动。33.8%的人估计孩子的疾病使家庭状况恶化,4.4%的人认为这导致了家庭解体。只有18.1%的母亲宣称父亲能够独自照顾患糖尿病的孩子。

结论

有必要支持受糖尿病影响的家庭。应培养他们的个人和社交技能,以便他们能够应对慢性病以及与管理糖尿病相关的职责。父母双方应分担责任。

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