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The need to establish sustainable public and patient involvement in research in low and middle income countries.

作者信息

Essex Ryan, Ocloo Josephine, Rao Mala

机构信息

Adult Nursing and Paramedic Science, The University of Greenwich and Barts Health NHS Trust, The University of Greenwich, Southwood Site, London SE9 2UG, UK.

Centre for Implementation Science, Health Service and Population Research Department, Institute of Psychiatry, Psychology & Neuroscience (IoPPN), King's College London, NIHR CLAHRC South London, 16 De Crespigny Park, London SE5 8AF, UK.

出版信息

J R Soc Med. 2019 Nov;112(11):456-458. doi: 10.1177/0141076819865867. Epub 2019 Jul 26.

DOI:10.1177/0141076819865867
PMID:31347947
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7164312/
Abstract
摘要

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Involving seldom-heard groups in a PPI process to inform the design of a proposed trial on the use of probiotics to prevent preterm birth: a case study.让很少被听到声音的群体参与患者和公众参与(PPI)过程,以为一项关于使用益生菌预防早产的拟议试验的设计提供信息:一项案例研究。
Res Involv Engagem. 2017 May 25;3:11. doi: 10.1186/s40900-017-0061-3. eCollection 2017.
2
'Is it worth doing?' Measuring the impact of patient and public involvement in research.“这值得做吗?”衡量患者及公众参与研究的影响。
Res Involv Engagem. 2015 Jul 31;1:6. doi: 10.1186/s40900-015-0008-5. eCollection 2015.
3
Black and minority ethnic group involvement in health and social care research: A systematic review.少数民族群体参与健康和社会保健研究:系统评价。
Health Expect. 2018 Feb;21(1):3-22. doi: 10.1111/hex.12597. Epub 2017 Aug 15.
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From tokenism to empowerment: progressing patient and public involvement in healthcare improvement.从象征主义到赋权:推动患者及公众参与医疗保健改善
BMJ Qual Saf. 2016 Aug;25(8):626-32. doi: 10.1136/bmjqs-2015-004839. Epub 2016 Mar 18.
5
A systematic review of the impact of patient and public involvement on service users, researchers and communities.患者和公众参与对服务使用者、研究人员和社区影响的系统评价。
Patient. 2014;7(4):387-95. doi: 10.1007/s40271-014-0065-0.
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Mapping the impact of patient and public involvement on health and social care research: a systematic review.探究患者及公众参与对健康和社会照护研究的影响:一项系统综述
Health Expect. 2014 Oct;17(5):637-50. doi: 10.1111/j.1369-7625.2012.00795.x. Epub 2012 Jul 19.
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