McNaughton Emily C, Curran Christopher, Granskie Jamie, Opler Mark, Sarkey Sara, Mucha Lisa, Eramo Anna, François Clement, Webber-Lind Briana, McCue Maggie
Research Department, PatientsLikeMe®, Cambridge, MA, USA.
MedAvante Prophase , New York, NY, USA.
Patient Prefer Adherence. 2019 Jun 14;13:959-967. doi: 10.2147/PPA.S204198. eCollection 2019.
Major depressive disorder (MDD) is a highly prevalent disorder, frequently diagnosed and treated in a primary care setting; however, little information is available about the treatment decision-making process between MDD patients and their providers. A shared decision-making and goal attainment approach to establishing and tracking progress toward treatment goals that are meaningful to individual patients is explored in this survey study. In addition, information about patient perspectives on setting treatment goals, medication selection/switching, and engaging patients with their health care professionals was also collected and evaluated. A 50-question online survey was administered to members of the PatientsLikeMe community who indicated an MDD diagnosis and a switch in antidepressant medications within the past 2 years. Follow-up interviews were also conducted with a small subset of these participants. Of the 200 participants who completed the survey, 42% reported currently having goals for MDD treatment. These goals were typically in the areas of physical health (62.7%), cognitive functioning (60.2%), and social aspects of life (57.8%). A majority of survey participants (61%) believed the goal attainment approach would be helpful to set and evaluate treatment goals. The data provide important insights into patient perspectives on the development of formal treatment plans and goals for MDD. In addition, the data also support the use of a patient-centric approach to shared decision-making by using a goal attainment scale to establish and track progress toward treatment goals that are meaningful to MDD patients in real-world clinical practice. The results of this study can be used to inform best practices in patient-clinician communication when developing an MDD treatment plan and goals.
重度抑郁症(MDD)是一种高度常见的疾病,在初级保健机构中经常被诊断和治疗;然而,关于MDD患者与其医疗服务提供者之间的治疗决策过程,目前可用信息很少。本调查研究探索了一种共同决策和目标达成的方法,用于建立并跟踪朝着对个体患者有意义的治疗目标取得的进展。此外,还收集并评估了有关患者对设定治疗目标、药物选择/更换以及患者与医护人员互动的看法的信息。对PatientsLikeMe社区中表示在过去2年内被诊断为MDD且更换过抗抑郁药物的成员进行了一项包含50个问题的在线调查。还对这些参与者中的一小部分进行了后续访谈。在完成调查的200名参与者中,42%报告目前有MDD治疗目标。这些目标通常涉及身体健康(62.7%)、认知功能(60.2%)和生活社会方面(57.8%)。大多数调查参与者(61%)认为目标达成方法有助于设定和评估治疗目标。这些数据为患者对MDD正式治疗计划和目标制定的看法提供了重要见解。此外,这些数据还支持在现实临床实践中采用以患者为中心的共同决策方法,即使用目标达成量表来建立并跟踪朝着对MDD患者有意义的治疗目标取得的进展。本研究结果可用于为制定MDD治疗计划和目标时的医患沟通最佳实践提供参考。