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强直性脊柱炎和银屑病关节炎患者的教育需求:一项横断面研究。

Educational needs in people with ankylosing spondylitis and psoriatic arthritis: a cross-sectional study.

机构信息

Rheumatology Department, Centro Hospitalar e Universitário de Coimbra, Portugal.

Rheumatology Department, Centro Hospitalar e Universitário de Coimbra, and Health Sciences Research Unit, Nursing (UICiSA:E), Nursing School of Coimbra (ESEnfC), Portugal.

出版信息

Clin Exp Rheumatol. 2020 Mar-Apr;38(2):282-288. doi: 10.55563/clinexprheumatol/eyyx5h. Epub 2019 Jul 22.

DOI:10.55563/clinexprheumatol/eyyx5h
PMID:31365330
Abstract

OBJECTIVES

To assess the educational needs of people with ankylosing spondylitis (AS) and psoriatic arthritis (PsA), test differences across patient subgroups and identify factors independently associated with their educational needs.

METHODS

This was a cross-sectional analytic study. Patients with AS and PsA completed the Portuguese version of the Educational Needs Assessment Tool (PortENAT). Data were Rasch-transformed before descriptive and inferential analyses were undertaken. Univariable and multivariable analyses were used to determine differences between patient subgroups and factors independently associated with their educational needs.

RESULTS

The study included 121 patients with AS and 132 with PsA. The level of educational needs varied by diagnostic group, but higher needs for both subgroups were reported regarding the "Disease process", "Feelings" and "Managing pain" domains. Overall, patients with AS had a higher level of educational needs than those with PsA. In both diagnostic groups, female gender was independently associated with higher educational needs. In the PsA group, a shorter disease duration was independently associated with higher educational needs in the following domains: "Managing pain", "Movement" and "Feelings".

CONCLUSIONS

Educational needs vary by diagnostic group, gender and disease duration. These differences merit consideration in the design of patient education interventions.

摘要

目的

评估强直性脊柱炎(AS)和银屑病关节炎(PsA)患者的教育需求,检验患者亚组之间的差异,并确定与其教育需求相关的独立因素。

方法

这是一项横断面分析研究。AS 和 PsA 患者完成了葡萄牙语版教育需求评估工具(PortENAT)。在进行描述性和推断性分析之前,对数据进行了 Rasch 转换。使用单变量和多变量分析来确定患者亚组之间的差异以及与他们的教育需求相关的独立因素。

结果

该研究纳入了 121 例 AS 患者和 132 例 PsA 患者。教育需求的水平因诊断组而异,但在“疾病过程”、“感觉”和“管理疼痛”领域,两个亚组的需求更高。总体而言,AS 患者的教育需求水平高于 PsA 患者。在两个诊断组中,女性与更高的教育需求相关。在 PsA 组中,疾病持续时间较短与以下领域的更高教育需求独立相关:“管理疼痛”、“运动”和“感觉”。

结论

教育需求因诊断组、性别和疾病持续时间而异。这些差异值得在设计患者教育干预措施时加以考虑。

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