Center of Excellence for Rehabilitation Medicine, UMC Utrecht Brain Center, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands.
Department of Rehabilitation, Physical Therapy Science & Sports, UMCU Utrecht Brain Center, University Medical Center, Utrecht, The Netherlands.
Disabil Rehabil. 2021 Mar;43(6):746-772. doi: 10.1080/09638288.2019.1641847. Epub 2019 Jul 31.
(1) To identify measures used to evaluate the impact of caregiving among caregivers of persons with stroke, spinal cord injury, and amputation; and (2) to systematically evaluate their clinimetric properties reported in validation studies.
Two separate systematic reviews (Embase, PsycINFO, CINAHL, Pubmed/Medline) were conducted. COSMIN guidelines were used to assess clinimetric properties and methodological quality of studies.
(1) 154 studies published between 2008 and May 2019 were included, in which 48 measures were used, mostly describing negative impact. Thirty measures were used only once and not further described. (2) In general, structural validity, internal consistency, and hypothesis testing were often investigated. Reliability, cross-cultural and criterion validity to a lesser extent, and scale development and content validity were rarely described. Tests of measurement error and responsiveness were exceptional. Most supporting evidence was found for the Zarit Burden Interview Short Form, Caregiver Burden Scale and Positive Aspects of Caregiving Questionnaire.
There is a wide variety of impact of caregiving measures. The present study provided a detailed overview of what is known about clinimetric characteristics of 18 different measures repeatedly used in research. The overview provides clinicians a guidance of appropriate measure selection.
CRD42018094796IMPLICATIONS FOR REHABILITATIONClinicians should be aware that information about measure development and clinimetric properties for most measures used to assess impact of informal caregiving is incomplete.Most supporting evidence was found for the Zarit Burden Interview Short Form, Caregiver Burden Scale and Positive Aspects of Caregiving Questionnaire.This overview of clinimetric properties provides clinicians guidance for selection of an appropriate measure.
（1）确定用于评估脑卒中、脊髓损伤和截肢患者照顾者照顾影响的测量方法；（2）系统评估其在验证研究中报告的临床计量学特性。
进行了两次独立的系统评价（Embase、PsycINFO、CINAHL、Pubmed/Medline）。使用 COSMIN 指南评估研究的临床计量学特性和方法学质量。
（1）2008 年至 2019 年 5 月期间共纳入 154 项研究，其中使用了 48 种测量方法，主要描述了负面影响。有 30 种测量方法仅使用过一次，没有进一步描述。（2）一般来说，结构有效性、内部一致性和假设检验经常被研究。可靠性、跨文化和标准有效性的研究较少，量表的开发和内容有效性则很少被描述。测量误差和反应性的测试则非常罕见。对 Zarit 负担访谈简短形式、照顾者负担量表和照顾积极方面问卷的支持证据最多。
评估照顾影响的方法种类繁多。本研究详细概述了在研究中反复使用的 18 种不同方法的临床计量学特征。该综述为临床医生提供了适当的测量方法选择指导。
注册：CRD42018094796
对康复的意义：临床医生应注意，大多数用于评估非正式照顾者影响的测量方法的测量开发和临床计量学特性信息并不完整。对 Zarit 负担访谈简短形式、照顾者负担量表和照顾积极方面问卷的支持证据最多。本临床计量学特性概述为临床医生选择合适的测量方法提供了指导。
