Division of Neuroscience and Experimental Psychology, School of Biological Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK.
Division of Nursing, Midwifery & Social Work, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Sciences Centre, Manchester, UK.
Int Psychogeriatr. 2020 Jul;32(7):875-880. doi: 10.1017/S1041610220000605.
This report describes the evaluation of the psychometric and clinimetric properties of nine self-report measures completed by informal care partners of individuals with mild cognitive impairment or dementia in Parkinson's disease and dementia with Lewy bodies. One hundred thirty-six care partners completed measures on relationship satisfaction, burden, stress, mood, resilience, health, quality of life, and feelings related to care provision. Psychometric properties, such as internal consistency, convergent validity, floor and ceiling effects, completion rate and data missingness, as well as clinimetric properties, such as time to administer, ease of scoring, readability and availability of the scales, were examined. Additionally, the design of the measure development studies was assessed with the 2018 COnsensus-based Standards for the selection of health Measurement Instruments (COSMIN) Risk of Bias checklist. Participants were mostly married women (>85%) with a mean age of 69.4 years. The methodological quality of the design of all measure development studies was "inadequate." Five widely applied measures (Zarit Burden Interview, Hospital Anxiety and Depression Scale, Short Form 12 Health Survey, Relatives' Stress Scale, and EuroQoL-5D) and two less researched instruments (Brief Resilience Scale and Relationship Satisfaction Scale) had high internal consistency and completion rates, moderate to strong convergent validity, low missingness and floor effects, and excellent clinical utility ratings. Two scales (Dyadic Relationship Scale and Family Caregiving Role) received poor psychometric ratings, and their usage among informal care partners is not recommended. In conclusion, well-validated and widely used measures received strong psychometric and clinimetric ratings. Future studies are required to determine the most reliable, valid and robust caregiver-reported measures.
本报告描述了对 9 种自我报告量表的心理计量学和临床有效性评估，这些量表由轻度认知障碍或帕金森病伴痴呆和路易体痴呆患者的非专业照护者完成。136 名照护者完成了与关系满意度、负担、压力、情绪、韧性、健康、生活质量以及与照护提供相关的感受相关的量表。评估了心理计量学特性，如内部一致性、收敛有效性、地板和天花板效应、完成率和数据缺失率，以及临床有效性特性，如管理时间、评分难度、可读性和量表可用性。此外，使用 2018 年基于共识的健康测量仪器选择标准（COSMIN）偏差风险检查表评估了量表开发研究的设计。参与者主要是已婚女性（>85%），平均年龄为 69.4 岁。所有量表开发研究设计的方法学质量均为“不充分”。五种广泛应用的量表（Zarit 负担访谈、医院焦虑和抑郁量表、简短形式 12 健康调查、亲属压力量表和 EuroQoL-5D）和两种研究较少的工具（简要韧性量表和关系满意度量表）具有较高的内部一致性和完成率、中等至较强的收敛有效性、较低的缺失率和地板效应以及出色的临床实用性评分。两种量表（对偶关系量表和家庭照护角色量表）的心理计量学评分较差，不建议非专业照护者使用。总之，经过充分验证和广泛使用的量表获得了较强的心理计量学和临床有效性评分。未来的研究需要确定最可靠、有效和稳健的 caregiver 报告量表。
