当患者身体机能逐渐衰退时尊严的意义。
The meaning of dignity when the patients' bodies are falling apart.
作者信息
Bruun Lorentsen Vibeke, Nåden Dagfinn, Sæteren Berit
机构信息
Department of Nursing and Health Promotion OsloMet - Oslo Metropolitan University Oslo Norway.
出版信息
Nurs Open. 2019 May 22;6(3):1163-1170. doi: 10.1002/nop2.301. eCollection 2019 Jul.
BACKGROUND
People with advanced cancer disease experience great bodily changes due to disease or treatment. They tend to feel ashamed when their bodies are subjected to such changes and they feel their dignity is threatened.
AIM
To explore the patients' experiences of the bodily changes in relation to dignity.
DESIGN
The study has a hermeneutic qualitative design.
METHOD
Individual in-depth interviews and participant observations were conducted with 13 patients with advanced cancer disease at a hospice inpatient unit in Norway. Gadamer's ontological hermeneutics inspired the interpretation.
RESULTS AND CONCLUSION
The patients' unpredictable, sick bodies forced the patients, or gave them the opportunity, to relate to their bodies in an honest way. The patients, living in interaction between suffering and health, strove to find dignity. The patients had a will to live and they experienced a love in their unruly bodies that both helped alleviate their suffering and give them an experience of enhanced dignity. It is important that nurses have insight into the consequences of bodily changes for the patients' experiences of dignity in health and suffering to provide good, dignified care.
背景
晚期癌症患者会因疾病或治疗而经历巨大的身体变化。当他们的身体出现这些变化时，往往会感到羞愧，并觉得自己的尊严受到了威胁。
目的
探讨患者在身体变化与尊严方面的经历。
设计
本研究采用诠释学质性设计。
方法
在挪威一家临终关怀住院部，对13名晚期癌症患者进行了个体深入访谈和参与观察。伽达默尔的本体论诠释学为解读提供了灵感。
结果与结论
患者不可预测的患病身体迫使他们，或给予他们机会，以诚实的方式面对自己的身体。患者生活在痛苦与健康的相互作用中，努力寻找尊严。患者有求生的意志，他们在难以控制的身体中体验到一种爱，这种爱既有助于减轻他们的痛苦，又能让他们体验到尊严的提升。护士了解身体变化对患者在健康和痛苦中尊严体验的影响，对于提供优质、有尊严的护理至关重要。
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