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一项针对帕金森病患者照料者的西班牙文版疾病心理社会适应量表(PAIS-SR)的初步研究。

A pilot study on the Spanish version of the Psychosocial Adjustment to Illness Scale (PAIS-SR) with carers of people with Parkinson's disease.

作者信息

Portillo Mari Carmen, Ambrosio Leire, Lanas Martín Raquel, Navarta Maria Victoria, Ursua Sesma MEugenia, Riverol Fernández Mario

机构信息

School of Health Sciences, NIHR Wessex CLAHRC University of Southampton Hampshire UK.

Department of Nursing Care for Adult Patients, School of Nursing University of Navarra Pamplona Spain.

出版信息

Nurs Open. 2019 Jul 1;6(3):1262-1268. doi: 10.1002/nop2.329. eCollection 2019 Jul.

DOI:10.1002/nop2.329
PMID:31367453
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6650674/
Abstract

AIM

To report the cross-cultural adaptation and pilot study of the ongoing validation of the Spanish version of the Psychosocial Adjustment to Illness Scale with carers of people with Parkinson's disease.

DESIGN

Cross-cultural adaptation and pilot study with a cross-sectional validation design of the Spanish version of the Psychosocial Adjustment to Illness Scale - Carers.

METHODS

Twenty-one carers of people with Parkinson's disease from a Primary Care practice in Spain were recruited and completed the PAIS-Carers, the SF-36 Health Survey, the Brief COPE Inventory and an assessment form. SPSS 23.0 was used to determine viability/acceptability and preliminary aspects of internal consistency of the instrument.

RESULTS

Five of the seven domains presented floor effect (71.42%), and only one presented ceiling effect (14.28%). The internal consistency of the scale and domains showed acceptable values (over 0.7). The content validity of the Spanish version seemed satisfactory with positive comments in general from participants.

摘要

目的

报告帕金森病患者照料者对疾病心理社会适应量表西班牙语版进行持续验证的跨文化适应及预试验研究。

设计

采用横断面验证设计,对疾病心理社会适应量表照料者版西班牙语版进行跨文化适应及预试验研究。

方法

招募了来自西班牙一家初级保健机构的21名帕金森病患者照料者,他们完成了疾病心理社会适应量表照料者版(PAIS-Carers)、SF-36健康调查、简易应对方式问卷(Brief COPE Inventory)及一份评估表。使用SPSS 23.0来确定该工具的可行性/可接受性以及内部一致性的初步情况。

结果

七个领域中有五个出现地板效应(71.42%),只有一个出现天花板效应(14.28%)。该量表及其各领域的内部一致性显示出可接受的值(超过0.7)。西班牙语版的内容效度似乎令人满意,参与者总体上给出了积极评价。

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