Ambrosio Leire, Navarta-Sánchez Mª Victoria, Portillo Mª Carmen, Martin-Lanas Raquel, Recio Miriam, Riverol Mario
Faculty of Nursing, University of Navarra, Pamplona, Spain.
Department of Nursing, Faculty of Medicine, Autonomous University of Madrid, Madrid, Spain.
Health Soc Care Community. 2021 Jul;29(4):1030-1040. doi: 10.1111/hsc.13137. Epub 2020 Aug 11.
Psychosocial adjustment to a complex and disabling long-term condition like Parkinson´s disease is a complex, dynamic, cyclical and interactive process. Family caregivers, face multiple challenges that require a significant effort in terms of psychosocial adjustment, which must be considered by healthcare professionals in order to provide a holistic care. The patients' self-report version of the Psychosocial Adjustment to Illness Scale (PAIS-SR), which has been validated in Spain for use in Parkinson's disease, is designed to evaluate the psychosocial adjustment of patients. Our purpose was to validate the Spanish PAIS-SR version for caregivers of patients with Parkinson's disease. An open, national cross-sectional study with one point-in-time evaluation and retest was carried out in 450 family caregivers of patients with Parkinson's disease. Data were collected in Spain from April 2016 to September 2017. The psychometric analysis performed showed that the Spanish version of the PAIS-SR for caregivers presents adequate indicators of reliability, internal and external validity, and is structured according to the seven-domain model proposed by the author of the instrument.
对帕金森病这样复杂且致残的长期病症进行心理社会调适是一个复杂、动态、循环且相互作用的过程。家庭照料者面临多重挑战，在心理社会调适方面需要付出巨大努力，医疗保健专业人员必须予以考虑，以便提供全面护理。患者自我报告版的疾病心理社会调适量表（PAIS-SR）已在西班牙针对帕金森病进行了验证，旨在评估患者的心理社会调适情况。我们的目的是验证西班牙版PAIS-SR在帕金森病患者照料者中的有效性。对450名帕金森病患者的家庭照料者开展了一项开放性全国横断面研究，进行了一次时间点评估和重新测试。2016年4月至2017年9月在西班牙收集了数据。进行的心理测量分析表明，照料者版西班牙PAIS-SR具有足够的信度、内部和外部效度指标，并且是根据该量表作者提出的七领域模型构建的。
