Oswald Laura B, Guitelman Judy, Buitrago Diana, Buscemi Joanna, Iacobelli Francisco, Perez-Tamayo Alejandra, Penedo Frank, Yanez Betina
Prog Community Health Partnersh. 2019;13(5):131-136. doi: 10.1353/cpr.2019.0046.
Compared with non-Latina White breast cancer survivors (BCS), Latina BCS have poorer health-related quality of life and greater psychosocial needs. However, Latinas are less engaged in clinical research owing to barriers including less access to health-related information, less awareness of clinical trials, and practical barriers (e.g., competing time demands). Latina BCS are in need of educational and health-related resources that are culturally informed, scalable, and accessible. In 2015, the Chicago Cancer Health Equity Collaborative (ChicagoCHEC), a National Cancer Institute research collaborative, and ALAS-WINGS, a community organization providing educational and supportive resources to Latina BCS, partnered to develop My Guide. My Guide is a smartphone application-based intervention for Latina BCS designed to improve health-related quality of life (HRQOL). This article summarizes the experiences of ChicagoCHEC and ALAS-WINGS throughout the community-engaged research (CEnR) partnership. Using existing relationships in community and academic settings via CEnR provides an ideal starting point for tailoring resources to Latina BCS and engaging Latina BCS in health-related research.
与非拉丁裔白人乳腺癌幸存者（BCS）相比，拉丁裔BCS的健康相关生活质量较差，心理社会需求更大。然而，由于包括获取健康相关信息较少、对临床试验的认识不足以及实际障碍（如时间需求冲突）等障碍，拉丁裔参与临床研究的程度较低。拉丁裔BCS需要具有文化适应性、可扩展且易于获取的教育和健康相关资源。2015年，美国国立癌症研究所的研究合作机构芝加哥癌症健康公平协作组织（ChicagoCHEC）与向拉丁裔BCS提供教育和支持资源的社区组织ALAS-WINGS合作开发了“My Guide”。My Guide是一款基于智能手机应用程序的针对拉丁裔BCS的干预措施，旨在改善健康相关生活质量（HRQOL）。本文总结了ChicagoCHEC和ALAS-WINGS在整个社区参与研究（CEnR）伙伴关系中的经验。通过CEnR利用社区和学术环境中的现有关系为为拉丁裔BCS量身定制资源并使拉丁裔BCS参与健康相关研究提供了理想的起点。
