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被诊断患有乳腺癌的拉丁裔女性中的医疗维权行动。

Medical Advocacy among Latina Women Diagnosed with Breast Cancer.

作者信息

Torres Paola, Guitelman Judith, Lucio Araceli, Rini Christine, Molina Yamilé

机构信息

University of Illinois Cancer Center, University of Illinois, Chicago, IL 60612, USA.

Asociación Latina de Asistencia y Prevención del Cáncer de Mama (ALAS-WINGS), Chicago, IL 60657, USA.

出版信息

Int J Environ Res Public Health. 2024 Apr 18;21(4):495. doi: 10.3390/ijerph21040495.

Abstract

Medical advocacy has continued to significantly impact quality of life and survivorship outcomes among Latina breast cancer survivors in the United States. However, little is known about the unique experiences of Latina survivors, including the perceived value, process, and context in which they practice medical advocacy. To help address this gap, we conducted a qualitative, secondary analysis of semi-structured focus groups with 18 Latina breast cancer survivors from Chicago, Illinois. Eligible women had to self-identify as (1) female, (2) Latina, (3) 18 years or older, and (4) having a breast cancer diagnosis 5 years ago or more. In total, 61% of participants were 50-59 years old, 83% were born in Mexico, and 100% spoke Spanish. The three emergent themes from the focus groups were (1) the cultural need for Latina advocates and support groups; (2) the process and experiences of becoming a community advocate within Latine culture; and (3) the cultural contexts for advocacy by Latina breast cancer survivors. Latina survivor advocates share strengths of receiving ongoing health education, peer support, and access to resources when being linked to a support group furthering their exposure to role models, increasing their awareness of opportunities in medical advocacy, and providing an entry to participate in medical advocacy.

摘要

在美国,医疗倡导继续对拉丁裔乳腺癌幸存者的生活质量和生存结果产生重大影响。然而,对于拉丁裔幸存者的独特经历,包括他们对医疗倡导的认知价值、过程和背景,我们知之甚少。为了填补这一空白,我们对来自伊利诺伊州芝加哥的18名拉丁裔乳腺癌幸存者进行了半结构化焦点小组的定性二次分析。符合条件的女性必须自我认定为(1)女性,(2)拉丁裔,(3)18岁或以上,以及(4)在5年前或更早被诊断出患有乳腺癌。总体而言,61%的参与者年龄在50至59岁之间,83%出生在墨西哥,100%会说西班牙语。焦点小组中出现的三个主题是:(1)拉丁裔倡导者和支持小组的文化需求;(2)在拉丁文化中成为社区倡导者的过程和经历;(3)拉丁裔乳腺癌幸存者进行倡导的文化背景。当与支持小组联系在一起时,拉丁裔幸存者倡导者能够获得持续的健康教育、同伴支持和资源,这有助于他们接触榜样、提高对医疗倡导机会的认识,并为参与医疗倡导提供途径。

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