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The importance of measuring the impact of patient-oriented research.衡量以患者为导向的研究的影响的重要性。
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What do I want from health research and researchers when I am a patient?当我作为一名患者时，我对健康研究及研究人员有何期望？
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本文引用的文献

1
From Craft to Reflective Art and Science Comment on "Metrics and Evaluation Tools for Patient Engagement in Healthcare Organization- and System-Level Decision-Making: A Systematic Review".从手工艺到反思艺术和科学——评“医疗组织和系统层面决策中患者参与的度量和评估工具：系统评价”。
Int J Health Policy Manag. 2019 Feb 1;8(2):124-127. doi: 10.15171/ijhpm.2018.108.
2
Patient and public engagement in research and health system decision making: A systematic review of evaluation tools.患者和公众参与研究和卫生系统决策：评价工具的系统评价。
Health Expect. 2018 Dec;21(6):1075-1084. doi: 10.1111/hex.12804. Epub 2018 Jul 30.
3
Patients' roles and rights in research.患者在研究中的角色与权利。
BMJ. 2018 Jul 25;362:k3193. doi: 10.1136/bmj.k3193.
4
Searching for the Impact of Participation in Health and Health Research: Challenges and Methods.探索参与健康和健康研究的影响：挑战与方法。
Biomed Res Int. 2018 May 13;2018:9427452. doi: 10.1155/2018/9427452. eCollection 2018.
5
The prevalence of patient engagement in published trials: a systematic review.已发表试验中患者参与的患病率：一项系统评价。
Res Involv Engagem. 2018 May 22;4:17. doi: 10.1186/s40900-018-0099-x. eCollection 2018.
6
Moving knowledge into action for more effective practice, programmes and policy: protocol for a research programme on integrated knowledge translation.将知识转化为行动，以实现更有效的实践、项目和政策：综合知识转化研究计划方案。
Implement Sci. 2018 Feb 2;13(1):22. doi: 10.1186/s13012-017-0700-y.
7
GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research.GRIPP2报告清单：用于改善患者和公众参与研究报告的工具。
Res Involv Engagem. 2017 Aug 2;3:13. doi: 10.1186/s40900-017-0062-2. eCollection 2017.
8
'Is it worth doing?' Measuring the impact of patient and public involvement in research.“这值得做吗？”衡量患者及公众参与研究的影响。
Res Involv Engagem. 2015 Jul 31;1:6. doi: 10.1186/s40900-015-0008-5. eCollection 2015.
9
An empirically based conceptual framework for fostering meaningful patient engagement in research.基于实证的概念框架，以促进患者有意义地参与研究。
Health Expect. 2018 Feb;21(1):396-406. doi: 10.1111/hex.12635. Epub 2017 Oct 6.
10
Questioning patient engagement: research scientists' perceptions of the challenges of patient engagement in a cardiovascular research network.对患者参与度的质疑：研究科学家对心血管研究网络中患者参与挑战的看法。
Patient Prefer Adherence. 2017 Sep 13;11:1573-1583. doi: 10.2147/PPA.S135457. eCollection 2017.

The importance of measuring the impact of patient-oriented research.

作者信息

Aubin Diane, Hebert Marilynne, Eurich Dean

机构信息

Career Development in Methods and Health Services Research (Aubin, Hebert, Eurich), Alberta SPOR SUPPORT Unit; School of Public Health (Aubin, Eurich), University of Alberta, Edmonton, Alta.; Department of Community Health Sciences (Hebert), Cumming School of Medicine, University of Calgary, Calgary, Alta.

出版信息

CMAJ. 2019 Aug 6;191(31):E860-E864. doi: 10.1503/cmaj.190237.

DOI:10.1503/cmaj.190237
PMID:31387956
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6682486/
Abstract
摘要