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英国癌症联合协会——头两年:一项全国癌症信息服务的评估

BACUP--the first two years: evaluation of a national cancer information service.

作者信息

Slevin M L, Terry Y, Hallett N, Jefferies S, Launder S, Plant R, Wax H, McElwain T

机构信息

Bacup, London.

出版信息

BMJ. 1988 Sep 10;297(6649):669-72. doi: 10.1136/bmj.297.6649.669.

DOI:10.1136/bmj.297.6649.669
PMID:3140928
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1834344/
Abstract

The cancer information service of the British Association of Cancer United Patients (BACUP) was launched in October 1985 as a national service to patients and their relatives, the public, and health professionals. Information is provided by telephone and letter by seven nurses trained in oncology. In the first two years over 30,000 inquiries were received: 23,527 (80%) were from women; 9445 (32%) were from cancer patients 11,574 (39%) from relatives of patients, and 2869 (10%) from health professionals. Inquiries came from all over the United Kingdom and from all sections of society but users were predominantly middle class, aged between 30 and 49, and living in south east England. Information about specific cancer sites, treatment, and how to cope was most commonly sought. Nearly a third of all inquiries were related to breast cancer. Though the service is used more by particular groups focusing on particular diseases, clearly there is a need for a cancer information service in the UK.

摘要

英国癌症联合患者协会(BACUP)的癌症信息服务于1985年10月启动,是一项面向患者及其亲属、公众和健康专业人员的全国性服务。由七名接受过肿瘤学培训的护士通过电话和信件提供信息。在最初的两年里,收到了超过30000次咨询:23527次(80%)来自女性;9445次(32%)来自癌症患者,11574次(39%)来自患者亲属,2869次(10%)来自健康专业人员。咨询来自英国各地和社会各阶层,但用户主要是中产阶级,年龄在30至49岁之间,居住在英格兰东南部。最常寻求的是关于特定癌症部位、治疗方法以及如何应对的信息。所有咨询中近三分之一与乳腺癌有关。尽管该服务在关注特定疾病的特定群体中使用较多,但显然英国需要一项癌症信息服务。

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本文引用的文献

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Health Educ J. 1983;42(2):53-4. doi: 10.1177/001789698304200208.
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Information and participation preferences among cancer patients.癌症患者的信息与参与偏好。
Ann Intern Med. 1980 Jun;92(6):832-6. doi: 10.7326/0003-4819-92-6-832.
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Cancer and beyond: the formation of BACUP.癌症及其他:BACUP的形成。
Br Med J (Clin Res Ed). 1985 Oct 12;291(6501):1021-3. doi: 10.1136/bmj.291.6501.1021.