Rosset Magdalena, Reifegerste Doreen, Baumann Eva, Kludt Evelyn, Weg-Remers Susanne
Institut für Journalistik und Kommunikationsforschung, Hochschule für Musik, Theater und Medien Hannover, Expo Plaza 12, 30539, Hannover, Deutschland.
Seminar für Medien- und Kommunikationswissenschaft, Universität Erfurt, Erfurt, Deutschland.
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2019 Sep;62(9):1120-1128. doi: 10.1007/s00103-019-02996-w.
Cancer information services (CISs) are a valuable source of evidence-based information. Previous studies in the field of CISs often investigate only short periods of time. However, there is a need for long-term analyses to identify changes in the use of CISs.
The purpose of this study was to analyze trends in the inquiries of patients and surrogate seekers to a CIS.
We conducted a secondary data analysis of the inquiry records of the German CIS (Krebsinformationsdienst, KID) hosted by the German Cancer Research Center from 1992 until 2016 (N = 545,070). Trends in the number of inquiries were described using the whole sample, while the description of further characteristics is based on a sample (n = 55,046) of patients, their family members, and friends.
The inquiries increased in the period examined (1992: 11,344 inquiries; 2016: 34,869 inquiries). Since 2005, a greater share of patients (between 52 and 60%) than surrogate seekers have been contacting the CIS. The mean age of both self-seeking and supported patients increased from under 55 years between 1992 and 2000 up to over 60 years in the year 2016. Breast cancer is at all times the most frequently inquired cancer type (patients: n = 11,319, 39%; surrogate seekers: n = 4173, 17%). Even after the implementation of e‑mail as an additional communication channel, the majority of inquirers still prefer contact by phone (between 80 and 98%).
Changes in the utilization of a CIS over time are discussed against the background of structural changes, such as shifts in prevalence rates, family structures, or media environments.
癌症信息服务（CISs）是循证信息的宝贵来源。以往在CISs领域的研究通常仅调查较短时间段。然而，需要进行长期分析以确定CISs使用情况的变化。
本研究旨在分析患者及替代寻求者向CIS咨询的趋势。
我们对德国癌症研究中心主办的德国CIS（癌症信息服务，KID）1992年至2016年的咨询记录进行了二次数据分析（N = 545,070）。使用整个样本描述咨询数量的趋势，而对其他特征的描述基于患者、其家庭成员和朋友的样本（n = 55,046）。
在所研究期间咨询量有所增加（1992年：11,344次咨询；2016年：34,869次咨询）。自2005年以来，联系CIS的患者比例（52%至60%）高于替代寻求者。自行咨询和有他人协助咨询的患者的平均年龄从1992年至2000年的55岁以下增加到2016年的60岁以上。乳腺癌始终是咨询最多的癌症类型（患者：n = 11,319，占39%；替代寻求者：n = 4173，占17%）。即使在将电子邮件作为额外沟通渠道实施后，大多数咨询者仍更喜欢通过电话联系（80%至98%）。
结合结构变化的背景，如患病率、家庭结构或媒体环境的转变，讨论了CIS随时间的使用变化情况。
