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'You are inferior!' Revisiting the expressivist argument.“你低人一等!”再探表现主义论证。
Bioethics. 2017 Sep;31(7):505-514. doi: 10.1111/bioe.12365. Epub 2017 Jun 14.
2
Outcomes of in vitro fertilization with preimplantation genetic diagnosis: an analysis of the United States Assisted Reproductive Technology Surveillance Data, 2011-2012.植入前基因诊断的体外受精结局:对2011 - 2012年美国辅助生殖技术监测数据的分析
Fertil Steril. 2016 Feb;105(2):394-400. doi: 10.1016/j.fertnstert.2015.10.018. Epub 2015 Nov 6.
3
Modelling Gaucher disease progression: long-term enzyme replacement therapy reduces the incidence of splenectomy and bone complications.戈谢病进展模型:长期酶替代疗法可降低脾切除术和骨并发症的发生率。
Orphanet J Rare Dis. 2014 Jul 24;9:112. doi: 10.1186/s13023-014-0112-x.
4
Ethical challenges in assisted reproduction: the place of preimplantation genetic diagnosis in a just society.辅助生殖中的伦理挑战:公正社会中植入前基因诊断的地位。
J Child Neurol. 2015 Apr;30(5):547-50. doi: 10.1177/0883073813511151. Epub 2013 Dec 11.
5
The case for a parental duty to use preimplantation genetic diagnosis for medical benefit.主张父母有义务使用胚胎植入前遗传学诊断来获得医疗益处。
Am J Bioeth. 2012;12(4):3-11. doi: 10.1080/15265161.2012.656798.
6
Toward an ethical eugenics: the case for mandatory preimplantation genetic selection.走向合乎伦理的优生学:强制胚胎植入前基因选择的理由。
JONAS Healthc Law Ethics Regul. 2012 Jan-Mar;14(1):7-13. doi: 10.1097/NHL.0b013e318244c69b.
7
Global cultural and socioeconomic factors that influence access to assisted reproductive technologies.影响辅助生殖技术可及性的全球文化和社会经济因素。
Womens Health (Lond). 2009 Jul;5(4):351-8. doi: 10.2217/whe.09.28.
8
The moral obligation to create children with the best chance of the best life.创造拥有过上最佳生活的最大机会的孩子的道德义务。
Bioethics. 2009 Jun;23(5):274-90. doi: 10.1111/j.1467-8519.2008.00687.x.
9
Just diagnosis? Preimplantation genetic diagnosis and injustices to disabled people.仅仅是诊断?植入前基因诊断与对残疾人的不公。
J Med Ethics. 2005 Apr;31(4):231-4. doi: 10.1136/jme.2003.006429.
10
Ageless bodies, happy souls: biotechnology and the pursuit of perfection.不老之躯,愉悦灵魂:生物技术与对完美的追求。
New Atlantis. 2003 Spring(1):9-28.

补贴 PGD:为基因选择提供资金的道德理由。

Subsidizing PGD: The Moral Case for Funding Genetic Selection.

机构信息

Monash Health, Clayton Road, Clayton, 3168, Australia.

University of Melbourne / Murdoch Children's Research Institute, Royal Children's Hospital, Flemington Rd, Parkville, VIC, 3052, Australia.

出版信息

J Bioeth Inq. 2019 Sep;16(3):405-414. doi: 10.1007/s11673-019-09932-2. Epub 2019 Aug 15.

DOI:10.1007/s11673-019-09932-2
PMID:31418161
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6831526/
Abstract

Preimplantation genetic diagnosis (PGD) allows the detection of genetic abnormalities in embryos produced through in vitro fertilization (IVF). Current funding models in Australia provide governmental subsidies for couples undergoing IVF, but do not extend to PGD. There are strong reasons for publicly funding PGD that follow from the moral principles of autonomy, beneficence and justice for both parents and children. We examine the objections to our proposal, specifically concerns regarding designer babies and the harm of disabled individuals, and show why these are substantially outweighed by arguments for subsidizing PGD. We argue that an acceptance of PGD is aligned with present attitudes towards procreative decision making and IVF use, and that it should therefore receive government funding.

摘要

胚胎植入前遗传学诊断(PGD)可检测体外受精(IVF)产生的胚胎中的遗传异常。澳大利亚目前的资金模式为接受 IVF 的夫妇提供政府补贴,但不包括 PGD。出于对父母和孩子的自主权、善行和正义的道德原则,有充分的理由支持公共资助 PGD。我们考察了对我们提案的反对意见,特别是对设计婴儿和残疾个体的伤害的担忧,并解释了为什么这些担忧远远被支持资助 PGD 的论点所抵消。我们认为,对 PGD 的接受与目前对生育决策和 IVF 使用的态度是一致的,因此应该获得政府的资金支持。