Lau Annie Y S, Staccini Pascal
Centre for Health Informatics, Australian Institute of Health Innovation, Macquarie University, Australia.
IRIS Department, URE RETINES, Faculté de Médecine, Université Côte d'Azur, France.
Yearb Med Inform. 2019 Aug;28(1):174-178. doi: 10.1055/s-0039-1677935. Epub 2019 Aug 16.
To summarise the state of the art during the year 2018 in consumer health informatics and education, with a special emphasis on the special topic of the International Medical Informatics Association (IMIA) Yearbook for 2019: "Artificial intelligence in health: new opportunities, challenges, and practical implications".
We conducted a systematic search of articles published in PubMed using a predefined set of queries that identified 99 potential articles for review. These articles were screened according to topic relevance and 14 were selected for consideration as best paper candidates. The 14 papers were then presented to a panel of international experts for full paper review and scoring. Three papers that received the highest score were discussed in a consensus meeting and were agreed upon as best papers on artificial intelligence in health for patients and consumers in the year 2018.
Only a small number of 2018 papers reported Artificial Intelligence (AI) research for patients and consumers. No studies were found on AI applications designed specifically for patients or consumers, nor were there studies that elicited patient and consumer input on AI. Currently, the most common use of AI for patients and consumers lies in secondary analysis of social media data (e.g., online discussion forums). In particular, the three best papers shared a common methodology of using data-driven algorithms (such as text mining, topic modelling, Latent Dirichlet allocation modelling), combined with insight-led approaches (e.g., visualisation, qualitative analysis and manual review), to uncover patient and consumer experiences of health and illness in online communities.
While discussion remains active on how AI could 'revolutionise' healthcare delivery, there is a lack of direction and evidence on how AI could actually benefit patients and consumers. Perhaps instead of primarily focusing on data and algorithms, researchers should engage with patients and consumers early in the AI research agenda to ensure we are indeed asking the right questions, and that important use cases and critical contexts are identified together with patients and consumers. Without a clear understanding on why patients and consumers need AI in the first place, or how AI could support individuals with their healthcare needs, it is difficult to imagine the kinds of AI applications that would have meaningful and sustainable impact on individual daily lives.
总结2018年消费者健康信息学与教育领域的发展现状,特别关注国际医学信息学协会(IMIA)2019年年鉴的专题:“健康领域的人工智能:新机遇、挑战及实际影响”。
我们使用一组预定义的查询词在PubMed上对发表的文章进行系统检索,共识别出99篇潜在的待审文章。根据主题相关性对这些文章进行筛选,选出14篇作为最佳论文候选文章。然后将这14篇论文提交给一个国际专家小组进行全文评审和评分。在一次共识会议上讨论了得分最高的三篇论文,并一致认定它们为2018年关于面向患者和消费者的健康领域人工智能的最佳论文。
2018年仅有少数论文报道了针对患者和消费者的人工智能研究。未发现专门为患者或消费者设计的人工智能应用研究,也没有关于征集患者和消费者对人工智能意见的研究。目前,人工智能在患者和消费者中的最常见用途是对社交媒体数据(如在线讨论论坛)进行二次分析。特别是,三篇最佳论文都采用了一种共同的方法,即使用数据驱动算法(如文本挖掘、主题建模、潜在狄利克雷分配建模),并结合洞察导向方法(如可视化、定性分析和人工评审),以揭示在线社区中患者和消费者的健康与疾病体验。
虽然关于人工智能如何“彻底改变”医疗服务的讨论仍然热烈,但对于人工智能如何真正使患者和消费者受益,缺乏方向和证据。或许研究人员不应主要专注于数据和算法,而应在人工智能研究议程的早期就与患者和消费者进行互动,以确保我们确实提出了正确的问题,并与患者和消费者共同确定重要的用例和关键背景。如果一开始就不清楚患者和消费者为何需要人工智能,或者人工智能如何满足他们的医疗需求,就很难想象什么样 的人工智能应用会对个人日常生活产生有意义且可持续的影响。