McSwiggan Linda C, Marston Judith, Campbell Martin, Kelly Timothy B, Kroll Thilo
School of Nursing and Health Sciences, University of Dundee, Dundee, UK.
NHS Fife, Fife, UK.
Health Soc Care Community. 2017 Jul;25(4):1404-1415. doi: 10.1111/hsc.12440. Epub 2017 Mar 10.
Respite services play an important role in supporting older adults and their carers. When an older person is unable to fully represent themselves, provision of respite care relies on effective information-sharing between carers and respite staff. This study aimed to explore, from carers' perspectives, the scope, quality and fit of information-sharing between carers, older people and respite services. An explorative, cross-sectional qualitative study involving a purposive sample of 24 carers, recruited via carer support groups and community groups in voluntary organisations, was undertaken in North East Scotland. Data were collected from August 2013 to September 2014, with participants taking part in a focus group or individual interview. Data were analysed systematically using the Framework Approach. The multiple accounts elicited from carers identified how barriers and facilitators to information-sharing with respite services changed over time across three temporal phases: 'Reaching a point', 'Trying it out' and 'Settled in'. Proactive information-sharing about accessibility and eligibility for respite care, and assessment of carers' needs in their own right, were initially important; as carers and older people moved on to try services out, time and space to develop mutual understandings and negotiate care arrangements came to the fore; then, once shared expectations had been established, carers' chief concerns were around continuity of care and maintaining good interpersonal relationships. The three temporal phases also impacted on which modes of information-sharing were available to, and worked best for, carers as well as on carers' perceptions of how information and communication technologies should be utilised. This study highlights the need for respite staff to take proactive, flexible approaches to working with carers and to make ongoing efforts to engage with carers, and older people, throughout the months and years of them utilising respite services. Information and communication technologies have potential to enhance information-sharing but traditional approaches will remain important.
喘息服务在支持老年人及其照料者方面发挥着重要作用。当老年人无法充分代表自己时，喘息护理的提供依赖于照料者与喘息服务工作人员之间的有效信息共享。本研究旨在从照料者的角度探讨照料者、老年人与喘息服务之间信息共享的范围、质量和适配性。在苏格兰东北部开展了一项探索性横断面定性研究，通过照料者支持小组和志愿组织中的社区团体，有目的地抽取了24名照料者作为样本。数据收集时间为2013年8月至2014年9月，参与者参加了焦点小组或个人访谈。使用框架法对数据进行了系统分析。从照料者那里获得的多方面描述确定了与喘息服务进行信息共享的障碍和促进因素如何在三个时间阶段随时间变化：“达到某个阶段”“尝试使用”和“适应阶段”。关于喘息护理的可及性和资格的主动信息共享，以及对照料者自身需求的评估，最初很重要；随着照料者和老年人开始尝试使用服务，培养相互理解和协商护理安排的时间和空间变得突出；然后，一旦建立了共同期望，照料者主要关心的是护理的连续性以及维持良好的人际关系。这三个时间阶段还影响了哪些信息共享模式可供照料者使用且对他们最有效，以及照料者对如何利用信息和通信技术的看法。本研究强调，喘息服务工作人员需要采取积极、灵活的方法与照料者合作，并在照料者和老年人使用喘息服务的数月乃至数年中持续努力与他们互动。信息和通信技术有增强信息共享的潜力，但传统方法仍将很重要。
