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接受定期血液透析的终末期肾病儿童的身体和心理社会状况评估:单中心经验

Assessment of physical and psychosocial status of children with ESRD under regular hemodialysis, a single centre experience.

作者信息

El-Gamasy Mohamed A, Eldeeb Mohsen M

机构信息

Pediatric Medicine, Faculty of Medicine, Tanta University, Egypt.

Faculty of Medicine, Tanta University, Egypt.

出版信息

Int J Pediatr Adolesc Med. 2017 Jun;4(2):81-86. doi: 10.1016/j.ijpam.2017.01.001. Epub 2017 Jul 28.

Abstract

BACKGROUND AND OBJECTIVES

Children with end stage renal disease (ESRD) under regular hemodialysis suffer from various health problems that result either from the sequelae of disease itself or its various lines of therapy. The aim of this study is to clarify biodemographic characteristics, common complaints, and physical, and psychosocial status of children with ESRD under regular maintenance hemodialysis.

PATIENTS AND METHODS

This study was conducted on forty children (13 males, 17 females) aged 6-16 years with ESRD under regular hemodialysis, selected from the Pediatric Nephrology Unit at Tanta University Hospitals. Three structured questionnaires were used that measured the biodemographic data of children and their parents, common complaints before and after the onset of hemodialysis, and a physical and psychosocial status assessment sheet comprising of nutritional habits, sleeping patterns, daily physical activities, school achievement, the emotional, behavioral and social aspects of children, and different social relationships.

RESULTS

Most children with ESRD exhibited abnormal nutritional habits, disturbed sleep, decreased physical daily activities, impaired school achievement, and changing emotions and behaviors, and depressed social relationships.

CONCLUSION

Common adverse effects of ESRD and hemodialysis in our center are inadequate nutritional status, abnormal sleep patterns, decreased physical activity, low school achievement, and psychosocial deterioration.

RECOMMENDATIONS

Great efforts on the part of parents, pediatric nephrologists, nurses, psychologist, and school teachers are needed to improve the physical and psychosocial health of dialysis patients and thereby improve their quality of life.

摘要

背景与目的

接受定期血液透析的终末期肾病(ESRD)患儿存在各种健康问题,这些问题要么源于疾病本身的后遗症,要么源于其各种治疗方法。本研究的目的是阐明接受定期维持性血液透析的ESRD患儿的生物人口学特征、常见主诉以及身体和心理社会状况。

患者与方法

本研究对40名年龄在6至16岁、接受定期血液透析的ESRD患儿(13名男性,17名女性)进行,这些患儿选自坦塔大学医院儿科肾脏病科。使用了三份结构化问卷,分别测量患儿及其父母的生物人口学数据、血液透析开始前后的常见主诉,以及一份身体和心理社会状况评估表,内容包括营养习惯、睡眠模式、日常身体活动、学业成绩、患儿的情绪、行为和社交方面,以及不同的社会关系。

结果

大多数ESRD患儿表现出营养习惯异常、睡眠紊乱、日常身体活动减少、学业成绩受损、情绪和行为变化以及社会关系淡漠。

结论

在我们中心,ESRD和血液透析的常见不良影响包括营养状况不佳、睡眠模式异常、身体活动减少、学业成绩低以及心理社会恶化。

建议

家长、儿科肾病学家、护士、心理学家和学校教师需要付出巨大努力,以改善透析患者的身体和心理社会健康,从而提高他们的生活质量。

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