Professor and Head, Department of Neuro-Physiotherapy, MGM School of Physiotherapy, Navi Mumbai, Maharashtra, India.
Assistant Professor, Department of Neuro-Physiotherapy, MGM School of Physiotherapy, Navi Mumbai, Maharashtra, India.
Indian J Public Health. 2019 Jul-Sep;63(3):254-257. doi: 10.4103/ijph.IJPH_239_18.
The present study aimed to find out the effect of disease-related impairments on functional status in individuals with spinal muscular atrophy and identify perceived barriers to undergo physiotherapy. The cross-sectional observational study was conducted on 90 participants from January to March 2018 using validated patient-reported questionnaire via electronic mail, along with Fatigue Severity Scale and ACTIVLIM. Results revealed that difficulty in sitting was due to scoliosis (36%) and muscle weakness (23%), the latter also contributing toward difficulty in standing and walking (59%). Inverse relationship exists between ACTIVLIM measures and fatigue severity scores (r = -0.338, P < 0.05), body mass index (r = -0.225, P < 0.05), age (r = -0.258, P < 0.05), and duration of illness (r = -0.257, P < 0.05). Economic constraints (27%), difficulty in traveling (17%), and lack of family support and mobility (14%) are perceived barriers to undergo physiotherapy. Functional impairments and identified barriers must be addressed as part of rehabilitation.
本研究旨在探讨疾病相关损伤对脊髓性肌萎缩症患者功能状态的影响，并确定进行物理治疗的感知障碍。本横断面观察性研究于 2018 年 1 月至 3 月期间通过电子邮件使用经过验证的患者报告问卷对 90 名参与者进行，同时使用疲劳严重程度量表和 ACTIVLIM。结果表明，坐姿困难是由于脊柱侧凸（36%）和肌肉无力（23%）引起的，后者也导致站立和行走困难（59%）。ACTIVLIM 测量值与疲劳严重程度评分（r = -0.338，P < 0.05）、体重指数（r = -0.225，P < 0.05）、年龄（r = -0.258，P < 0.05）和疾病持续时间（r = -0.257，P < 0.05）呈负相关。进行物理治疗的感知障碍包括经济限制（27%）、出行困难（17%）以及缺乏家庭支持和行动能力（14%）。必须解决功能障碍和确定的障碍，作为康复的一部分。
