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残疾儿童父母压力介导的生活质量结果:一项病例对照研究。

Stress-mediated quality of life outcomes in parents of disabled children: A case-control study.

作者信息

Chakraborty Bhaswati, Rao Arathi, Shenoy Ramya, Davda Latha, Suprabha B S

机构信息

Department of Paedodontics and Preventive Dentistry, Manipal College of Dental Sciences, Mangalore Manipal Academy of Higher Education, Manipal, Karnataka, India.

Department of Public Health Dentistry, Manipal College of Dental Sciences, Mangalore Manipal Academy of Higher Education, Manipal, Karnataka, India.

出版信息

J Indian Soc Pedod Prev Dent. 2019 Jul-Sep;37(3):237-244. doi: 10.4103/JISPPD.JISPPD_266_18.

DOI:10.4103/JISPPD.JISPPD_266_18
PMID:31584022
Abstract

BACKGROUND

The purpose of the present study was to resolve whether caregiving for a child with disability influences the physical and mental health of the caregivers and whether stress is related to the quality of life of the caregivers.

METHODS

The Parental Stress Scale questionnaire for the assessment of parental stress and the Short Form-12 version 2 questionnaire for the assessment of physical and mental health quality of life were distributed among 69 parents of developmentally disabled children and 137 parents of healthy children (control group). Various sociodemographic factors were also included.

RESULTS

A significant difference was seen between the two groups in terms of employment, presence of disabled sibling, smoking, and physical activity. Parents of developmentally disabled children had significantly higher stress levels and worse mental health-related quality of life. Overall physical health quality of life was similar between cases and controls. Stress had a negative correlation with both mental and physical health quality of life of the parents.

CONCLUSION

Stress related to raising a child with disability negatively influences the parental quality of life. Stress management aiming at its prevention and reduction might be significant aspects of intervention for the improvement of the quality of life of the caregivers.

摘要

背景

本研究的目的是确定照顾残疾儿童是否会影响照顾者的身心健康,以及压力是否与照顾者的生活质量相关。

方法

向69名发育障碍儿童的父母和137名健康儿童的父母(对照组)发放用于评估父母压力的父母压力量表问卷和用于评估身心健康生活质量的简明健康调查简表2。还纳入了各种社会人口学因素。

结果

两组在就业、残疾兄弟姐妹的存在、吸烟和体育活动方面存在显著差异。发育障碍儿童的父母压力水平显著更高,心理健康相关生活质量更差。病例组和对照组的总体身体健康生活质量相似。压力与父母的心理健康和身体健康生活质量均呈负相关。

结论

抚养残疾儿童相关的压力对父母的生活质量有负面影响。旨在预防和减轻压力的压力管理可能是改善照顾者生活质量干预措施的重要方面。

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