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本文引用的文献

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Does Lack of "Genetic-Relative Family Health History" Represent a Potentially Avoidable Health Disparity for Adoptees?缺乏“遗传相关家族健康史”是否代表了收养儿童潜在可避免的健康差距？
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2
Participation in the Adoption Mentoring Partnership: Mentors' Experiences of Ethnic Identity.参与领养指导伙伴关系：指导者的种族身份体验。
New Dir Child Adolesc Dev. 2015 Dec;2015(150):77-89. doi: 10.1002/cad.20123.
3
Microaggressions, Feelings of Difference, and Resilience Among Adopted Children with Sexual Minority Parents.有性少数群体父母的领养儿童中的微侵犯、差异感和复原力
J Youth Adolesc. 2016 Jan;45(1):85-104. doi: 10.1007/s10964-015-0353-6. Epub 2015 Sep 15.
4
Maintaining confidentiality in qualitative publications.
Qual Health Res. 2015 Feb;25(2):151-2. doi: 10.1177/1049732314563489.
5
Adult birth mothers who made open infant adoption placements after adolescent unplanned pregnancy.在青少年意外怀孕后进行公开婴儿收养安置的成年生母。
J Obstet Gynecol Neonatal Nurs. 2014 Mar-Apr;43(2):190-9. doi: 10.1111/1552-6909.12280. Epub 2014 Feb 6.
6
Adoptees' Curiosity and Information Seeking about Birth Parents in Emerging Adulthood: Context, Motivation, and Behavior.成年初期被收养者对亲生父母的好奇心及信息探寻：背景、动机与行为
Int J Behav Dev. 2013 Sep 1;37(5). doi: 10.1177/0165025413486420.
7
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Many Faces of Openness in Adoption: Perspectives of Adopted Adolescents and Their Parents.收养中的开放性的多面性：被收养青少年及其父母的观点
Adopt Q. 2008 Jul 1;10(3 & 4):79-101. doi: 10.1080/10926750802163204.
10
"What's your favorite color?" Reporting irrelevant demographics in qualitative research.“你最喜欢的颜色是什么？”定性研究中报告无关的人口统计学信息。
Qual Health Res. 2008 Mar;18(3):299-300. doi: 10.1177/1049732307310995.

收养研究中的伦理考量：在收养亲属网络中应对保密与隐私问题

Ethical Considerations in Adoption Research: Navigating Confidentiality and Privacy Across the Adoption Kinship Network.

作者信息

Lo Albert Y H, Grotevant Harold D, McRoy Ruth G

机构信息

University of Massachusetts Amherst.

Boston College.

出版信息

Adopt Q. 2019;22(1):75-93. doi: 10.1080/10926755.2018.1488328. Epub 2019 Jan 26.

DOI:10.1080/10926755.2018.1488328
PMID:31598062
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6785193/
Abstract

Adoption research often includes multiple members of the adoption network, each of whom has distinctive perspectives. Participants may include adopted individuals and their siblings as well as adoptive parents, birth parents, and adoption professionals. Due to these multiple informants and the sensitivity of the topics explored in adoption research, researchers encounter several unique ethical concerns when working with populations impacted by adoption. The current paper addresses confidentiality and privacy issues that arise when conducting adoption research. Examples from a longitudinal study on openness in adoption are provided to highlight strategies that can be used to address these issues.

摘要

收养研究通常涉及收养网络中的多名成员，他们每个人都有独特的视角。参与者可能包括被收养者及其兄弟姐妹，以及养父母、亲生父母和收养专业人员。由于存在这些多个信息提供者，且收养研究中探讨的主题具有敏感性，研究人员在与受收养影响的人群合作时会遇到一些独特的伦理问题。本文讨论了开展收养研究时出现的保密和隐私问题。文中提供了一项关于收养中公开性的纵向研究的实例，以突出可用于解决这些问题的策略。