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“医院与日常生活是两个世界”:患者及医护人员在肾移植过程中关于协作的经历与观点

'The hospital and everyday life are two worlds': Patients' and healthcare professionals' experiences and perspectives on collaboration in the kidney transplantation process.

作者信息

Nielsen Charlotte, Agerskov Hanne, Bistrup Claus, Clemensen Jane

机构信息

Department of Nephrology Odense University Hospital Odense Denmark.

Department of Clinical Research University of Southern Denmark Odense Denmark.

出版信息

Nurs Open. 2019 Aug 10;6(4):1491-1500. doi: 10.1002/nop2.349. eCollection 2019 Oct.

DOI:10.1002/nop2.349
PMID:31660177
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6805260/
Abstract

AIM

To explore patients' and healthcare professionals' experiences and perspectives on collaboration in the kidney transplantation process.

DESIGN

A qualitative study with a phenomenological-hermeneutic approach.

METHOD

Participant observation and interviews were conducted with 18 patients, together with a focus group with eight healthcare professionals from April 2016-January 2017. The data analysis was inspired by Ricoeur's theory.

RESULTS

While patients acknowledged that the healthcare professionals were experts, they also requested an everyday life approach to treatment and care, because both professional knowledge and everyday life experiences were needed to manage everyday life. A contrast between patients' experiences and healthcare professionals' knowledge was identified, and the empowerment approach could be a way to combine the different perspectives.

摘要

目的

探讨患者及医疗保健专业人员在肾移植过程中对合作的体验和看法。

设计

采用现象学诠释学方法的定性研究。

方法

2016年4月至2017年1月,对18名患者进行了参与观察和访谈,并与8名医疗保健专业人员进行了焦点小组讨论。数据分析受利科理论的启发。

结果

虽然患者承认医疗保健专业人员是专家,但他们也要求采用日常生活方式进行治疗和护理,因为管理日常生活既需要专业知识,也需要日常生活经验。研究发现了患者体验与医疗保健专业人员知识之间的差异,而赋权方法可能是整合不同观点的一种方式。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/afb0/6805260/9f54c75b3fcf/NOP2-6-1491-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/afb0/6805260/9d625be042a5/NOP2-6-1491-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/afb0/6805260/9f54c75b3fcf/NOP2-6-1491-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/afb0/6805260/9d625be042a5/NOP2-6-1491-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/afb0/6805260/9f54c75b3fcf/NOP2-6-1491-g002.jpg

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1
Perspectives on Quality of Care in Kidney Transplantation: A Semistructured Interview Study.肾移植护理质量的观点:一项半结构化访谈研究。
Transplant Direct. 2018 Aug 21;4(9):e383. doi: 10.1097/TXD.0000000000000820. eCollection 2018 Sep.
2
Self-management challenges and support needs among kidney transplant recipients: A qualitative study.肾移植受者的自我管理挑战与支持需求:一项定性研究。
J Adv Nurs. 2018 Oct;74(10):2393-2405. doi: 10.1111/jan.13730. Epub 2018 Jul 10.
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Participatory design methods in telemedicine research.远程医疗研究中的参与式设计方法。
肾移植受者术后自我管理的知识、态度和实践。
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Stressors and coping resources of Australian kidney transplant recipients related to medication taking: a qualitative study.澳大利亚肾移植受者与服药相关的压力源及应对资源:一项定性研究。
J Clin Nurs. 2017 Jun;26(11-12):1495-1507. doi: 10.1111/jocn.13435. Epub 2017 Mar 20.
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Motivations, Challenges, and Attitudes to Self-management in Kidney Transplant Recipients: A Systematic Review of Qualitative Studies.肾移植受者自我管理的动机、挑战和态度:定性研究的系统评价。
Am J Kidney Dis. 2016 Mar;67(3):461-78. doi: 10.1053/j.ajkd.2015.07.030. Epub 2015 Sep 11.
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'Suspended in a paradox'-patient attitudes to wait-listing for kidney transplantation: systematic review and thematic synthesis of qualitative studies.“处于矛盾之中”——患者对肾脏移植等待名单的态度:定性研究的系统评价与主题综合
Transpl Int. 2015 Jul;28(7):771-87. doi: 10.1111/tri.12575. Epub 2015 Apr 20.
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A mixed-method study to explore patients' perspective of self-management tasks in the early phase after kidney transplant.一项混合方法研究,旨在探索肾移植术后早期患者对自我管理任务的看法。
Prog Transplant. 2014 Mar;24(1):8-18. doi: 10.7182/pit2014728.
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Patient engagement as a risk factor in personalized health care: a systematic review of the literature on chronic disease.患者参与作为个性化医疗保健的风险因素:慢性疾病文献的系统综述。
Genome Med. 2014 Feb 26;6(2):16. doi: 10.1186/gm533. eCollection 2014.
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Renal recipients' educational experiences in the early post-operative phase--a qualitative study.肾移植受者术后早期的教育经历——一项定性研究。
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Ambivalent lived experiences and instruction need of patients in the early period after kidney transplantation: a phenomenological study.
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