Jorge Rafaela, Teixeira Andreia, Calanzani Natália, Nunes Rui, Sousa Liliana
Programa Doutoral em Geriatria e Gerontologia, Departamento de Educação e Psicologia, Universidade de Aveiro. Campus Universitário de Santiago. 3810-193. Aveiro, Portugal.
Centro de Investigação em Tecnologias e Serviços de Saúde (CINTESIS). Porto, Portugal.
Cien Saude Colet. 2019 Oct 28;24(11):4313-4324. doi: 10.1590/1413-812320182411.02022018. eCollection 2019.
This study aimed to determine the preferences of community-dwelling older people about information disclosure regarding poor prognosis, the likely symptoms and problems, and the care options available in a situation of serious illness with less than a year to live; and to identify factors associated with a preference for information disclosure regarding poor prognosis. The Brazilian version of the Preferences and Priorities for End of Life Care (PRISMA) questionnaire was administered face-to-face to 400 older people, living in the city of Belo Horizonte, Minas Gerais, Brazil. The main results indicated that 74.0% preferred to be informed that they had limited time left, 89.3% wished to be informed about symptoms and problems, and 96.3% about available care options. The factors associated with preferences for information about poor prognosis were: gender (women: OR = 0.446, 95% CI: 0.269-0.738) and choosing the least preferred place to die (home of a relative or friend: OR = 2.423, 95% CI: 1.130-5.198. These results show that most older people want to be informed in an advanced illness situation with less than a year to live. Health care professionals need to be prepared to anticipate news about poor prognosis and the disease.
本研究旨在确定居家老年人对于有关预后不良、可能出现的症状和问题以及在生命不足一年的重病情况下可用护理选择的信息披露的偏好；并确定与偏好披露预后不良信息相关的因素。对居住在巴西米纳斯吉拉斯州贝洛奥里藏特市的400名老年人面对面发放了巴西版的临终关怀偏好与优先事项（PRISMA）问卷。主要结果表明，74.0%的人更希望被告知他们剩余时间有限，89.3%的人希望了解症状和问题，96.3%的人希望了解可用护理选择。与偏好预后不良信息相关的因素有：性别（女性：比值比=0.446，95%置信区间：0.269 - 0.738）以及选择最不希望的死亡地点（亲戚或朋友家：比值比=2.423，95%置信区间：1.130 - 5.198）。这些结果表明，大多数老年人希望在生命不足一年的重病情况下得到相关信息。医疗保健专业人员需要做好准备，提前告知预后不良和疾病的消息。
