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本文引用的文献

1
Patient Engagement in Research and Innovation: A New Framework.患者参与研究与创新:一个新框架。
J Med Imaging Radiat Sci. 2016 Dec;47(4):290-293. doi: 10.1016/j.jmir.2016.10.008. Epub 2016 Oct 28.
2
The dark side of coproduction: do the costs outweigh the benefits for health research?共同生产的阴暗面:对于健康研究来说,其成本是否超过了收益?
Health Res Policy Syst. 2019 Mar 28;17(1):33. doi: 10.1186/s12961-019-0432-3.
3
Ageing well: evaluation of social participation and quality of life tools to enhance community aged care (study protocol).健康老龄化:评估社会参与和生活质量工具以加强社区老年护理(研究方案)。
BMC Geriatr. 2019 Mar 12;19(1):78. doi: 10.1186/s12877-019-1094-2.
4
Integrating social engagement instruments into Australian community aged care assessments to enhance service provision.将社会参与工具整合到澳大利亚社区老年护理评估中,以加强服务提供。
Health Soc Care Community. 2018 Nov;26(6):810-818. doi: 10.1111/hsc.12591. Epub 2018 Aug 3.
5
How to engage stakeholders in research: design principles to support improvement.如何让利益相关者参与研究:支持改进的设计原则。
Health Res Policy Syst. 2018 Jul 11;16(1):60. doi: 10.1186/s12961-018-0337-6.
6
Implementing Information and Communication Technology to Support Community Aged Care Service Integration: Lessons from an Australian Aged Care Provider.实施信息通信技术以支持社区老年护理服务整合:来自澳大利亚一家老年护理服务提供商的经验教训
Int J Integr Care. 2017 Apr 10;17(1):9. doi: 10.5334/ijic.2437.
7
Engaging patients and consumers in research evidence: Applying the conceptual model of patient and family engagement.让患者和消费者参与研究证据:应用患者及家庭参与的概念模型。
Patient Educ Couns. 2017 Jan;100(1):25-29. doi: 10.1016/j.pec.2016.07.009. Epub 2016 Jul 22.
8
Beyond rhetoric: we need a strategy for patient involvement in the health service.超越言辞:我们需要一项让患者参与医疗服务的策略。
BMJ. 2014 Jun 23;348:g4072. doi: 10.1136/bmj.g4072.
9
Patient engagement in research: a systematic review.患者参与研究:一项系统评价。
BMC Health Serv Res. 2014 Feb 26;14:89. doi: 10.1186/1472-6963-14-89.
10
A practice-based tool for engaging stakeholders in future research: a synthesis of current practices.一种基于实践的工具,用于让利益相关者参与未来的研究:当前实践的综合。
J Clin Epidemiol. 2013 Jun;66(6):666-74. doi: 10.1016/j.jclinepi.2012.12.010. Epub 2013 Mar 13.

居家和社区基础老年护理的根基:成功让消费者参与的策略。

At the grassroots of home and community-based aged care: strategies for successful consumer engagement.

机构信息

Australian Institute of Health Innovation, Macquarie University Faculty of Medicine and Health Sciences, Sydney, New South Wales, Australia

Australian Institute of Health Innovation, Macquarie University Faculty of Medicine and Health Sciences, Sydney, New South Wales, Australia.

出版信息

BMJ Open. 2019 Nov 21;9(11):e028754. doi: 10.1136/bmjopen-2018-028754.

DOI:10.1136/bmjopen-2018-028754
PMID:31753868
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6886916/
Abstract

OBJECTIVES

(1) To describe the processes used to plan and conduct a stakeholder forum in aged care as a means of informing future uptake of consumer participatory research. (2) To discuss how capturing and drawing on stakeholders' experiences of aged care can generate new research ideas and inform the delivery of more person-centred aged care services.

KEY PRINCIPLES OF CONSUMER ENGAGEMENT

A stakeholder forum was conducted as part of Ageing Well, a 2-year project evaluating the value and impact of social participation and quality of life tools as part of routine community aged care assessments at a large Australian provider. The forum was codesigned with community aged care clients and care coordinators and aimed to coproduce implementation strategies with a targeted representation of stakeholders. The stakeholder forum was developed using five key principles of consumer engagement activities: purposeful, inclusive, timely, transparent and respectful. The forum fostered an environment of mutual respect and collective inquiry to encourage contributions from all participants. This article outlines practical guidance on using a consumer engagement framework and the lessons learnt.

DISCUSSION

The stakeholder forum facilitated an understanding of consumers' needs and existing gaps in aged care services and the circumstances that can enable or hinder the delivery and implementation of these services. This collective information can guide future research and policy at institutional, regional and national committees that relate to aged care.

TRIAL REGISTRATION NUMBER

ACTRN12617001212347.

摘要

目的

(1) 描述在老年护理中规划和开展利益攸关方论坛的过程,以此作为告知未来参与消费者参与式研究的一种方式。(2) 讨论如何捕捉和借鉴利益攸关方在老年护理方面的经验,从而产生新的研究思路,并为提供更以患者为中心的老年护理服务提供信息。

消费者参与的主要原则

作为“健康老龄化”项目的一部分,举办了一次利益攸关方论坛。该项目为期两年,评估了社会参与和生活质量工具的价值和影响,作为澳大利亚一家大型供应商对社区老年护理常规评估的一部分。该论坛与社区老年护理客户和护理协调员共同设计,旨在针对目标利益攸关方共同制定实施策略。该利益攸关方论坛是使用消费者参与活动的五个主要原则制定的:有目的、包容、及时、透明和尊重。该论坛营造了相互尊重和集体探究的环境,鼓励所有参与者做出贡献。本文概述了使用消费者参与框架的实用指南和经验教训。

讨论

利益攸关方论坛使人们更好地了解了消费者的需求以及老年护理服务中现有的差距,以及能够促进或阻碍这些服务的提供和实施的情况。这些集体信息可以指导与老年护理相关的机构、地区和国家委员会的未来研究和政策。

试验注册号

ACTRN12617001212347。