NIHR Collaboration for Leadership in Applied Health Research (CLAHRC) Wessex, School of Health Sciences, University of Southampton, Southampton, UK.
Sociol Health Illn. 2020 Mar;42(3):579-595. doi: 10.1111/1467-9566.13042. Epub 2019 Nov 25.
The 'care transition' is characterised by reduced state involvement in chronic illness management in response to socio-political movements aimed at meeting the challenges presented by an increased prevalence of chronic illness. Amongst these changes has been online communities' rising importance in everyday interactions and attention is being increasingly paid towards the ways online contacts might contribute to self-management. Whilst research has illuminated the relevance of personal networks in long-term condition management, it is relevant to extend this work to consider the place of ties mediated online in this bricolage of support, including better understanding the work drawn from them and the strategies involved in eliciting it. This study examined the work and relatedness of 30 participants, who used online communities. Participants were asked about the role of on and offline ties and ego network mapping was used to frame conversations about the nature of this support. The context of engagement followed three main themes. Participants drew from online communities in response to deficits in offline support, they used online ties to leverage support or action from offline ties and they used online ties to substitute offline support, with less intimate online ties.
“护理过渡”的特点是国家对慢性病管理的参与减少，以应对旨在应对慢性病发病率上升带来的挑战的社会政治运动。这些变化包括在线社区在日常互动中的重要性日益提高，人们越来越关注在线联系如何有助于自我管理。虽然研究已经阐明了人际关系在长期疾病管理中的相关性，但将这项工作扩展到考虑在线中介关系在这种支持拼凑中的作用是很重要的，包括更好地理解从中获得的工作以及从中获得支持的策略。本研究调查了 30 名使用在线社区的参与者的工作和相关性。要求参与者描述线上和线下关系的作用，并使用自我网络映射来构建关于这种支持性质的对话。参与的背景遵循三个主要主题。参与者从在线社区中获取信息，以弥补线下支持的不足，他们利用在线关系从线下关系中获得支持或采取行动，他们利用线上关系替代线下关系，尤其是与线下关系不太亲密的关系。
