Muller Kristen, Brady Nancy C, Warren Steven F, Fleming Kandace K
Department of Speech-Language-Hearing: Sciences and Disorders, The University of Kansas, Schiefelbusch Institute for Life Span Studies, Lawrence, KS 66045, USA.
Research Design and Analysis Unit, The University of Kansas, Schiefelbusch Institute for Life Span Studies, Lawrence, KS 66045, USA.
J Intellect Dev Disabil. 2019;44(4):481-491. doi: 10.3109/13668250.2018.1496379. Epub 2018 Sep 16.
Individuals with intellectual and developmental disabilities are more likely to engage in problem behaviours than peers with typical development. The purpose of this study was to provide descriptive and qualitative information about problem behaviours in children with fragile X syndrome (FXS) and how families respond to these behaviours.
We examined interview responses from 53 mothers of 9-year-old children with FXS.
Defiance, tantrums, inattention, stereotypy, and aggression were the most frequently reported problem behaviours of children with FXS. Stereotypy, physical aggression, self-injury, and elopement were reported more often by mothers of children with dual diagnoses of FXS and autism than by mothers of children with a single diagnosis of FXS.
Results indicated that for many families, by 9 years of age, problem behaviours led to frustration and altered family activities.
与发育正常的同龄人相比，智力和发育障碍患者更有可能出现问题行为。本研究的目的是提供有关脆性X综合征（FXS）儿童问题行为的描述性和定性信息，以及家庭如何应对这些行为。
我们研究了53位9岁FXS儿童母亲的访谈回复。
违抗、发脾气、注意力不集中、刻板行为和攻击行为是FXS儿童最常被报告的问题行为。与仅诊断为FXS的儿童母亲相比，同时诊断为FXS和自闭症的儿童母亲报告的刻板行为、身体攻击、自我伤害和离家出走更为常见。
结果表明，对于许多家庭来说，到9岁时，问题行为会导致沮丧并改变家庭活动。
