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肿瘤学中预先指示的制定与实施障碍:一项文献综述

Barriers to the composition and implementation of advance directives in oncology: a literature review.

作者信息

Buiar Pedro Grachinski, Goldim José Roberto

机构信息

Medical Oncology Department, Hospital de Clínicas de Porto Alegre (HCPA), Porto Alegre, RS 90035-007, Brazil.

http://orcid.org/0000-0001-5144-1197.

出版信息

Ecancermedicalscience. 2019 Nov 12;13:974. doi: 10.3332/ecancer.2019.974. eCollection 2019.

DOI:10.3332/ecancer.2019.974
PMID:31921345
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6946425/
Abstract

The advance directive (AD) is an important resource in oncology and all areas of medicine directly involved in the care of palliative patients. It provides people with the right to have their living wills honoured when they cannot respond by themselves. Despite their importance, ADs are still underused in most countries due to multiple factors. The objective of this review is to better categorise the barriers and difficulties that could impair the composition and implementation of ADs, allowing direct efforts against these obstacles. After the literature review, we believe that there would be five steps in the trajectory of an AD (discussion, composition, registration, access and implementation) and that all those steps can be affected by factors involving the health systems and professionals, the patient themselves and relatives or caregivers.

摘要

预先指示(AD)是肿瘤学以及直接参与姑息治疗患者护理的所有医学领域的一项重要资源。它赋予人们在无法自行回应时,其生前遗嘱得到尊重的权利。尽管预先指示很重要,但由于多种因素,在大多数国家它们仍未得到充分利用。本综述的目的是更好地对可能妨碍预先指示的制定和实施的障碍与困难进行分类,以便能直接应对这些障碍。在文献综述之后,我们认为预先指示的过程会有五个步骤(讨论、制定、登记、获取和实施),并且所有这些步骤可能会受到涉及卫生系统和专业人员、患者本人以及亲属或护理人员等因素的影响。

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Factors related to advance directives completion among cancer patients: a systematic review.癌症患者签署预立医疗指示的相关因素:系统评价。

本文引用的文献

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Evaluating an Intervention to Improve Communication Between Oncology Clinicians and Patients With Life-Limiting Cancer: A Cluster Randomized Clinical Trial of the Serious Illness Care Program.评估一项改善肿瘤临床医生与生命末期癌症患者沟通的干预措施:严重疾病护理计划的一项集群随机临床试验。
JAMA Oncol. 2019 Jun 1;5(6):801-809. doi: 10.1001/jamaoncol.2019.0292.
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Impact of Accuracy of Survival Predictions on Quality of End-of-Life Care Among Patients With Metastatic Cancer Who Receive Radiation Therapy.生存预测准确性对接受放射治疗的转移性癌症患者临终关怀质量的影响。
J Oncol Pract. 2019 Mar;15(3):e262-e270. doi: 10.1200/JOP.18.00516. Epub 2019 Jan 8.
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BMC Palliat Care. 2024 Jan 3;23(1):3. doi: 10.1186/s12904-023-01327-w.
4
Why is advance care planning underused in oncology settings? A systematic overview of reviews to identify the benefits, barriers, enablers, and interventions to improve uptake.为什么预先护理计划在肿瘤学环境中未得到充分利用?对相关综述进行系统概述,以确定改善其采用情况的益处、障碍、促进因素和干预措施。
Front Oncol. 2023 Apr 28;13:1040589. doi: 10.3389/fonc.2023.1040589. eCollection 2023.
5
"SpezPat"- common advance directives versus disease-centred advance directives: a randomised controlled pilot study on the impact on physicians' understanding of non-small cell lung cancer patients' end-of-life decisions.SpezPat- 常见的预先指示与以疾病为中心的预先指示:一项关于影响医生对非小细胞肺癌患者临终决策理解的随机对照初步研究。
BMC Palliat Care. 2022 Sep 28;21(1):167. doi: 10.1186/s12904-022-01057-5.
End-of-life decisions guiding the palliative care of cancer patients visiting emergency department in South Western Finland: a retrospective cohort study.
芬兰西南部癌症患者急诊姑息治疗的临终决策:一项回顾性队列研究。
BMC Palliat Care. 2018 Dec 17;17(1):128. doi: 10.1186/s12904-018-0383-4.
4
Advance care planning for patients with cancer in the palliative phase in Dutch general practices.荷兰普通诊所中晚期癌症患者的预先医疗计划。
Fam Pract. 2019 Oct 8;36(5):587-593. doi: 10.1093/fampra/cmy124.
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A randomised controlled trial of an advance care planning intervention for patients with incurable cancer.一项针对不可治愈癌症患者的预先医疗照护计划干预的随机对照试验。
Br J Cancer. 2018 Nov;119(10):1182-1190. doi: 10.1038/s41416-018-0303-7. Epub 2018 Oct 29.
6
The conceptual models and mechanisms of action that underpin advance care planning for cancer patients: A systematic review of randomised controlled trials.支撑癌症患者预先医疗照护计划的概念模型和作用机制:一项随机对照试验的系统评价。
Palliat Med. 2019 Jan;33(1):5-23. doi: 10.1177/0269216318809582. Epub 2018 Oct 26.
7
Integration of oncology and palliative care: a Lancet Oncology Commission.肿瘤学与姑息治疗的整合:柳叶刀肿瘤学委员会报告
Lancet Oncol. 2018 Nov;19(11):e588-e653. doi: 10.1016/S1470-2045(18)30415-7. Epub 2018 Oct 18.
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The earlier the better: the role of palliative care consultation on aggressive end of life care, hospice utilization, and advance care planning documentation among gynecologic oncology patients.尽早咨询:姑息治疗咨询在妇科肿瘤患者积极的临终关怀、临终关怀利用和预先护理计划文件方面的作用。
Support Care Cancer. 2019 May;27(5):1927-1934. doi: 10.1007/s00520-018-4457-x. Epub 2018 Sep 12.
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Mild cognitive dysfunction of caregivers and its association with care recipients' end-of-life plans and preferences.照料者轻度认知功能障碍及其与照护对象临终计划和偏好的关系。
PLoS One. 2018 Apr 30;13(4):e0196147. doi: 10.1371/journal.pone.0196147. eCollection 2018.
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Assessing the Decision-Making Capacity of Terminally Ill Patients with Cancer.评估癌症终末期患者的决策能力。
Am J Geriatr Psychiatry. 2018 May;26(5):523-531. doi: 10.1016/j.jagp.2017.11.012. Epub 2017 Dec 27.