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真色彩远程症状监测系统:十年发展历程

The True Colours Remote Symptom Monitoring System: A Decade of Evolution.

作者信息

Goodday Sarah M, Atkinson Lauren, Goodwin Guy, Saunders Kate, South Matthew, Mackay Clare, Denis Mike, Hinds Chris, Attenburrow Mary-Jane, Davies Jim, Welch James, Stevens William, Mansfield Karen, Suvilehto Juulia, Geddes John

机构信息

Department of Psychiatry, University of Oxford, Oxford, United Kingdom.

4YouandMe, Seattle, WA, United States.

出版信息

J Med Internet Res. 2020 Jan 15;22(1):e15188. doi: 10.2196/15188.

Abstract

The True Colours remote mood monitoring system was developed over a decade ago by researchers, psychiatrists, and software engineers at the University of Oxford to allow patients to report on a range of symptoms via text messages, Web interfaces, or mobile phone apps. The system has evolved to encompass a wide range of measures, including psychiatric symptoms, quality of life, and medication. Patients are prompted to provide data according to an agreed personal schedule: weekly, daily, or at specific times during the day. The system has been applied across a number of different populations, for the reporting of mood, anxiety, substance use, eating and personality disorders, psychosis, self-harm, and inflammatory bowel disease, and it has shown good compliance. Over the past decade, there have been over 36,000 registered True Colours patients and participants in the United Kingdom, with more than 20 deployments of the system supporting clinical service and research delivery. The system has been adopted for routine clinical care in mental health services, supporting more than 3000 adult patients in secondary care, and 27,263 adolescent patients are currently registered within Oxfordshire and Buckinghamshire. The system has also proven to be an invaluable scientific resource as a platform for research into mood instability and as an electronic outcome measure in randomized controlled trials. This paper aimed to report on the existing applications of the system, setting out lessons learned, and to discuss the implications for tailored symptom monitoring, as well as the barriers to implementation at a larger scale.

摘要

“真实色彩”远程情绪监测系统是十多年前由牛津大学的研究人员、精神科医生和软件工程师开发的,旨在让患者通过短信、网络界面或手机应用程序报告一系列症状。该系统已发展到涵盖广泛的测量内容,包括精神症状、生活质量和药物治疗。系统会根据商定的个人时间表提示患者提供数据:每周、每天或一天中的特定时间。该系统已应用于许多不同人群,用于报告情绪、焦虑、物质使用、饮食和人格障碍、精神病、自我伤害以及炎症性肠病,并且显示出良好的依从性。在过去十年中,英国有超过36000名注册的“真实色彩”患者和参与者,该系统有20多次部署,支持临床服务和研究开展。该系统已被用于心理健康服务的常规临床护理,为二级护理中的3000多名成年患者提供支持,目前牛津郡和白金汉郡有27263名青少年患者注册使用该系统。该系统还被证明是一种宝贵的科学资源,可作为研究情绪不稳定的平台以及随机对照试验中的电子结局指标。本文旨在报告该系统的现有应用情况,总结经验教训,并讨论其对定制症状监测的意义以及大规模实施的障碍。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/291f/6996723/958a487a8d75/jmir_v22i1e15188_fig1.jpg

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