MATTER Lab, Child Mind Institute, New York, NY, United States.
Computational Neuroimaging Lab, Child Mind Institute, New York, NY, United States.
J Med Internet Res. 2021 Nov 11;23(11):e22369. doi: 10.2196/22369.
Universal access to assessment and treatment of mental health and learning disorders remains a significant and unmet need. There are many people without access to care because of economic, geographic, and cultural barriers, as well as the limited availability of clinical experts who could help advance our understanding and treatment of mental health.
This study aims to create an open, configurable software platform to build clinical measures, mobile assessments, tasks, and interventions without programming expertise. Specifically, our primary requirements include an administrator interface for creating and scheduling recurring and customized questionnaires where end users receive and respond to scheduled notifications via an iOS or Android app on a mobile device. Such a platform would help relieve overwhelmed health systems and empower remote and disadvantaged subgroups in need of accurate and effective information, assessment, and care. This platform has the potential to advance scientific research by supporting the collection of data with instruments tailored to specific scientific questions from large, distributed, and diverse populations.
We searched for products that satisfy these requirements. We designed and developed a new software platform called MindLogger, which exceeds the requirements. To demonstrate the platform's configurability, we built multiple applets (collections of activities) within the MindLogger mobile app and deployed several of them, including a comprehensive set of assessments underway in a large-scale, longitudinal mental health study.
Of the hundreds of products we researched, we found 10 that met our primary requirements with 4 that support end-to-end encryption, 2 that enable restricted access to individual users' data, 1 that provides open-source software, and none that satisfy all three. We compared features related to information presentation and data capture capabilities; privacy and security; and access to the product, code, and data. We successfully built MindLogger mobile and web applications, as well as web browser-based tools for building and editing new applets and for administering them to end users. MindLogger has end-to-end encryption, enables restricted access, is open source, and supports a variety of data collection features. One applet is currently collecting data from children and adolescents in our mental health study, and other applets are in different stages of testing and deployment for use in clinical and research settings.
We demonstrated the flexibility and applicability of the MindLogger platform through its deployment in a large-scale, longitudinal, mobile mental health study and by building a variety of other mental health-related applets. With this release, we encourage a broad range of users to apply the MindLogger platform to create and test applets to advance health care and scientific research. We hope that increasing the availability of applets designed to assess and administer interventions will facilitate access to health care in the general population.
普及心理健康和学习障碍的评估和治疗服务仍然是一项重大且尚未满足的需求。由于经济、地理和文化障碍,以及缺乏能够帮助我们增进对心理健康的理解和治疗的临床专家,许多人无法获得护理。
本研究旨在创建一个开放、可配置的软件平台,无需编程专业知识即可构建临床措施、移动评估、任务和干预措施。具体来说,我们的主要要求包括一个管理员界面,用于创建和安排定期和定制的问卷,其中最终用户通过移动设备上的 iOS 或 Android 应用程序接收和响应预定通知。这样的平台将有助于缓解不堪重负的医疗系统,并为需要准确和有效的信息、评估和护理的远程和弱势亚群提供支持。该平台有可能通过支持针对来自大型、分布式和多样化人群的特定科学问题量身定制的仪器来收集数据,从而推进科学研究。
我们搜索了满足这些要求的产品。我们设计和开发了一个名为 MindLogger 的新软件平台,它超出了要求。为了展示平台的可配置性,我们在 MindLogger 移动应用程序中构建了多个 applet(活动集合),并部署了其中的几个,包括在一项大型纵向心理健康研究中正在进行的一套全面评估。
在我们研究的数百种产品中,我们找到了 10 种满足我们主要需求的产品,其中 4 种产品支持端到端加密,2 种产品允许对个别用户数据进行受限访问,1 种产品提供开源软件,但没有一种产品同时满足这三个要求。我们比较了与信息呈现和数据采集功能相关的功能;隐私和安全;以及对产品、代码和数据的访问。我们成功构建了 MindLogger 移动和网络应用程序,以及用于构建和编辑新 applet 以及向最终用户管理它们的基于网络浏览器的工具。MindLogger 具有端到端加密、允许受限访问、是开源的,并支持各种数据采集功能。一个 applet 目前正在我们的心理健康研究中从儿童和青少年那里收集数据,其他 applet 正在不同的测试和部署阶段,用于临床和研究环境。
我们通过将 MindLogger 平台部署在一项大型纵向移动心理健康研究中,并构建了各种其他与心理健康相关的 applet,展示了该平台的灵活性和适用性。通过此次发布,我们鼓励广泛的用户使用 MindLogger 平台创建和测试 applet,以推进医疗保健和科学研究。我们希望增加用于评估和管理干预措施的 applet 的可用性,将有助于普及医疗保健。