Boztepe Handan, Çınar Sevil, Özgür Md Fatma Figen
Department of Nursing, Faculty of Health Sciences, Atılım University, Ankara, Turkey.
Pediatric Nursing Department, Faculty of Health Sciences, Artvin Çoruh University, Artvin, Turkey.
Cleft Palate Craniofac J. 2020 Jun;57(6):753-761. doi: 10.1177/1055665619898592. Epub 2020 Jan 17.
To explore parenting stress and factors affecting the mothers of infants with cleft lip and/or palate (CL/P) in Turkey.
The study compared mothers of infants born with CL/P (n = 90) with mothers of healthy infants (n = 90). Mothers completed the data collection form, the Parenting Stress Index-Short Form, and the Multidimensional Scale of Perceived Social Support.
Mothers of infants born with CL/P had higher mean parenting stress scores than the control mothers. A significant negative relationship was found between social support and parenting stress for mothers of infants born with CL/P but was not related for control mothers. Among mothers with an infant with CL/P, the mean parenting stress scores were higher for mothers preoperatively than mothers responding postoperatively. Among mothers with an infant with a cleft, higher stress was found for diagnosis after birth, not breastfeeding, feeding difficulties, lack of fathers' support, perceived difficult infant temperament, blame, anger, and concern for the future.
Parenting stress was higher and social support was lower for mothers of infants with a cleft. Treatment teams can design interventions aimed at factors related to stress, such as addressing feeding issues, teaching coping skills, and linking to social support.
探讨土耳其唇腭裂（CL/P）患儿母亲的育儿压力及影响因素。
本研究将唇腭裂患儿母亲（n = 90）与健康婴儿母亲（n = 90）进行比较。母亲们完成了数据收集表、《育儿压力指数简表》和《领悟社会支持多维量表》。
唇腭裂患儿母亲的平均育儿压力得分高于对照组母亲。唇腭裂患儿母亲的社会支持与育儿压力之间存在显著负相关，但对照组母亲不存在这种相关性。在唇腭裂患儿母亲中，术前母亲的平均育儿压力得分高于术后母亲。在唇腭裂患儿母亲中，出生后诊断、非母乳喂养、喂养困难、缺乏父亲支持、感知到婴儿气质难养、自责、愤怒和对未来的担忧等情况会导致更高的压力。
唇腭裂患儿母亲的育儿压力更高，社会支持更低。治疗团队可以针对与压力相关的因素设计干预措施，如解决喂养问题、教授应对技巧以及提供社会支持。
