Suppr超能文献

“我想和你在一起,但我患有多发性硬化症”:从多发性硬化症患者的角度看人际关系的挑战。

'I want to be with you, but I have MS': Challenges of interpersonal relationships from the MS patients' point of view.

机构信息

Department of Psychology, University of Isfahan, Isfahan, Islamic Republic of Iran.

Isfahan University of Medical Sciences, Isfahan, Islamic Republic of Iran.

出版信息

Health Soc Care Community. 2020 May;28(3):1030-1037. doi: 10.1111/hsc.12936. Epub 2020 Feb 4.

Abstract

Interpersonal relationships play an important role in adjustment to disease, coping and improving life quality after onset of Multiple sclerosis (MS). However, considering its specific nature, MS has a considerable effect on interpersonal relationships. Thus, this study was conducted to identify and describe effects of disease on interpersonal relationships through investigating lived experiences of patients. In this research, a total of 24 MS patients were selected through purposive sampling from individuals referred to the MS Clinic of Kashani Hospital in Isfahan, Iran, during 2016-2017, and then in-depth interviews were done with participants. After analysing interviews by Giorgi Descriptive Phenomenological Psychological Method, five main themes were obtained including 'Who is guilty?', 'The need for informed care', 'living with a secret', 'Change in relationships' and 'The Reality slap'. Content of experience for some of these themes was more influenced by nature of the disease, whereas some other themes were influenced more by patient's cultural context.

摘要

人际关系在多发性硬化症(MS)发病后的疾病适应、应对和提高生活质量方面起着重要作用。然而,考虑到其特殊性,MS 对人际关系有相当大的影响。因此,本研究旨在通过调查患者的生活经历,确定和描述疾病对人际关系的影响。在这项研究中,我们通过目的性抽样从 2016 年至 2017 年期间被转诊到伊朗伊斯法罕卡沙尼医院多发性硬化症诊所的患者中选择了 24 名 MS 患者,然后对参与者进行了深入访谈。通过对 Giorgi 描述性现象学心理方法进行分析,得出了五个主要主题,包括“谁有罪?”、“需要知情护理”、“与秘密生活”、“关系的变化”和“现实的打击”。这些主题的一些体验内容更多地受到疾病性质的影响,而其他一些主题则更多地受到患者文化背景的影响。

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验