Joensen Birna Mohr, Nielsen Sonja, Róin Ása
Naina, Recreation Home, Tórshavn, Faroe Islands.
Department of Internal Medicine, National Hospital, Tórshavn, Faroe Islands.
J Multidiscip Healthc. 2020 Jan 17;13:63-70. doi: 10.2147/JMDH.S233313. eCollection 2020.
Research has indicated that cancer patients living in rural areas receive poorer quality of treatment and care than their urban counterparts. With a population of approximately 51,000, the Faroe Islands may be characterized as a small-scale, rural society. Due to the geographical location and size of the Faroe Islands, patients who live there often receive part of their treatment abroad. Although a shift in the focus of cancer care from a disease-focused approach to a person-centered approach has been successfully implemented elsewhere, legal and structural conditions unique to the Faroe Islands might prohibit the realization of this paradigmatic shift in the Faroe Islands. The aim of this qualitative study was to examine how Faroese cancer patients have experienced their disease, treatment, and care and provide additional knowledge on cancer patients living in small-scale and rural societies.
Five men and three women who had been through a cancer treatment course with a good prognosis volunteered to be interviewed. Their ages varied from 40 to 80 years. "Active interviewing", a constructionist approach to qualitative interviewing and latent thematic analysis, was applied.
Three overlapping themes were identified from the categories: sense of coherence, resources and challenges in everyday life, and trust in the system. The analysis uncovered multiple factors related to legal and structural conditions that were barriers to ensuring the quality of cancer care for patients, for instance, shifting consultants, a lack of coherence in treatment, information loss and insufficient contact with cancer nurse specialists.
This study is based on a limited number of participants. However, the findings from this study provide insight into the special conditions of cancer patients living in a small-scale, rural society and help explain disparities in the quality of cancer treatment and care between urban and rural areas.
研究表明，与城市癌症患者相比，农村地区的癌症患者接受的治疗和护理质量较差。法罗群岛人口约51,000，可被视为一个小规模的农村社会。由于法罗群岛的地理位置和面积，居住在那里的患者常常在国外接受部分治疗。尽管癌症护理的重点已从以疾病为中心的方法成功转向以患者为中心的方法，但法罗群岛特有的法律和结构条件可能会阻碍这种范式转变在法罗群岛的实现。这项定性研究的目的是调查法罗群岛的癌症患者如何体验他们的疾病、治疗和护理，并提供关于生活在小规模农村社会中的癌症患者的更多知识。
五名男性和三名女性完成了预后良好的癌症治疗疗程，他们自愿接受访谈。他们的年龄在40岁至80岁之间。采用了“主动访谈”，这是一种建构主义的定性访谈和潜在主题分析方法。
从分类中确定了三个重叠的主题：连贯感、日常生活中的资源和挑战以及对系统的信任。分析发现了与法律和结构条件相关的多个因素，这些因素是确保患者癌症护理质量的障碍，例如顾问更换、治疗缺乏连贯性、信息丢失以及与癌症护理专家的接触不足。
本研究基于有限数量的参与者。然而，本研究的结果提供了对生活在小规模农村社会中的癌症患者特殊情况的洞察，并有助于解释城乡之间癌症治疗和护理质量的差异。
