Franceschini Christian, Fante Chiara, Folli Maria Claudia, Filosa Maria, Pizza Fabio, Antelmi Elena, Ingravallo Francesca, Plazzi Giuseppe
Department of Medicine and Surgery, University of Parma, Parma, Italy.
Istituto per le Tecnologie Didattiche, National Research Council, Genova, Italy.
J Clin Sleep Med. 2020 Apr 15;16(4):597-603. doi: 10.5664/jcsm.8286.
The objective of this study was to assess the narratives from the recalled accounts of cataplexy attacks of patients with narcolepsy type 1 (NT1).
Twenty-two drug-naive adult patients meeting the International Classification of Sleep Disorders criteria for the diagnosis of NT1 referring to the Narcolepsy Center of the University of Bologna in the year 2017 underwent a semistructured interview focusing on their personal experiences during the cataplectic attacks. Verbatim transcripts were analyzed by thematic analysis of elementary contexts using T-LAB software.
The thematic analysis performed on the entire body text showed 3 clusters that explained 36.2%, 34.1%, and 29.7% of the variance, respectively: a cluster related to situations that trigger attacks of cataplexy, a cluster to bodily sensations, and another control strategies during episodes. The thematic content highlighted a tendency to disregard emotional experiences, thus affecting the ability to name, recognize, and regulate critical emotions.
The study showed that patients with NT1 spoke of their cataplectic attacks in terms of self-reported bodily experiences, trigger situations, and their management. Therefore, patients may have developed strategies of symptom management focused on emotion avoidance and/or inhibition.
本研究的目的是评估1型发作性睡病（NT1）患者猝倒发作回忆叙述。
2017年，22名未接受过药物治疗的成年患者符合国际睡眠障碍分类中NT1的诊断标准，他们前往博洛尼亚大学发作性睡病中心接受了半结构化访谈，重点是他们在猝倒发作期间的个人经历。使用T-LAB软件通过对基本语境的主题分析来分析逐字记录。
对全文本进行的主题分析显示出3个聚类，分别解释了36.2%、34.1%和29.7%的方差：一个与引发猝倒发作的情况相关的聚类，一个与身体感觉相关的聚类，以及另一个发作期间的控制策略聚类。主题内容突出了忽视情感体验的倾向，从而影响了命名、识别和调节关键情绪的能力。
该研究表明，NT1患者从自我报告的身体体验、触发情况及其管理方面讲述了他们的猝倒发作。因此，患者可能已经制定了侧重于避免和/或抑制情绪的症状管理策略。
