Austin Elizabeth, LeRouge Cynthia, Hartzler Andrea L, Chung Arlene E, Segal Courtney, Lavallee Danielle C
Department of Surgery, Surgical Outcomes Research Center, University of Washington, Seattle, Washington, USA.
Department of Information Systems & Business Analytics, College of Business, Florida International University, Miami, Florida, USA.
JAMIA Open. 2019 Aug 20;2(4):407-410. doi: 10.1093/jamiaopen/ooz042. eCollection 2019 Dec.
Despite the demonstrated value of patient-centered care, health systems have been slow to integrate the patient's voice into care delivery through patient-reported outcomes (PROs) with electronic tools. This is due in part to the complex interplay of technology, workflow, and human factors that shape the success of electronic PROs (ePROs) use. The 2018 American Medical Informatics Association Annual Symposium served as the setting for a half-day interactive workshop with diverse stakeholders to discuss proposed best practices for the planning, design, deployment, and evaluation of ePROs. We provide this collective commentary that synthesizes participant feedback regarding critical challenges that prohibit the scale and spread of ePROs across healthcare delivery systems, including governance and leadership, workflow and human factors, informatics, and data science. In order to realize the promise of ePROs at scale, adaptable approaches are critical to balance the needs of individual users with health systems at large.
尽管以患者为中心的护理已展现出其价值，但卫生系统在通过电子工具利用患者报告结局（PRO）将患者声音融入护理服务方面进展缓慢。部分原因在于技术、工作流程和人为因素之间复杂的相互作用，这些因素影响着电子PRO（ePRO）使用的成功与否。2018年美国医学信息学协会年度研讨会为一场为期半天的互动式工作坊提供了契机，该工作坊汇聚了不同的利益相关者，以讨论关于ePRO规划、设计、部署和评估的拟议最佳实践。我们提供这份集体评论，综合了参与者对于阻碍ePRO在医疗保健服务系统中规模化和广泛应用的关键挑战的反馈，这些挑战包括治理与领导力、工作流程与人为因素、信息学以及数据科学等方面。为了大规模实现ePRO的前景，适应性方法对于平衡个体用户与整个卫生系统的需求至关重要。
