Department of Community Medicine and Rehabilitation, Umeå University, Umeå, Sweden.
Department of Health and Rehabilitation Sciences, Division of Physiotherapy, Stellenbosch University, Cape Town, South Africa.
BMC Neurol. 2020 Feb 10;20(1):50. doi: 10.1186/s12883-020-01632-4.
Parkinson's disease (PD) is a devastating neurodegenerative disorder. Reduced balance is one of the cardinal symptoms of PD, predisposing people living with PD to experience difficulties with the execution of tasks and activities, as well as hindering their involvement in meaningful life areas. The overarching aim of this study was to explore how deficits in balance control manifest in everyday life and how it is managed by people with PD (PwPD).
Qualitative description was used as methodology, and in-depth interviews were conducted with 18 participants, between the ages of 46 to 83 years, with mild to severe PD. Interview transcripts were analyzed using qualitative content analysis, following an inductive approach.
One theme emerged from the analysis: Increased planning-choreographing life. Within this overarching theme, two categories were identified, namely Limitations in mobility and New restricted functioning in everyday life, each with 3-4 sub-categories. The categories described how PwPD handled decreased balance control in their everyday life by using motor and cognitive strategies as a consequence of not trusting their body's capacity to control balance. Activities in everyday life, as well as the ability to partake in leisure and social activities were profoundly affected.
People with mild to severe PD used strategies to handle decreased balance and they choreographed their lives around their individual current state of mobility and balance. The knowledge gained from this study can be used to develop targeted interventions addressing the nuances of balance deficits in everyday life.
帕金森病（PD）是一种破坏性的神经退行性疾病。平衡受损是 PD 的主要症状之一，使 PD 患者在执行任务和活动时容易出现困难，并阻碍他们参与有意义的生活领域。本研究的首要目标是探讨平衡控制缺陷如何在日常生活中表现出来，以及 PD 患者（PwPD）如何管理这些缺陷。
本研究采用定性描述作为研究方法，对 18 名年龄在 46 至 83 岁之间、患有轻至重度 PD 的参与者进行了深入访谈。采用归纳法对访谈记录进行了定性内容分析。
分析结果得出一个主题：增加规划和编排生活。在这个总体主题下，确定了两个类别，分别是行动受限和日常生活新受限，每个类别都有 3-4 个子类别。这些类别描述了 PwPD 如何通过使用运动和认知策略来处理日常生活中的平衡控制下降，因为他们不再信任自己身体控制平衡的能力。日常生活中的活动以及参与休闲和社交活动的能力都受到了深远的影响。
患有轻至重度 PD 的患者使用策略来应对平衡下降，并根据自己当前的移动和平衡状态来编排自己的生活。本研究获得的知识可用于开发针对日常生活中平衡缺陷的针对性干预措施。
