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失语症扰乱了常规护理:卒中团队为失语症患者提供医疗护理的看法。

Aphasia disrupts usual care: the stroke team's perceptions of delivering healthcare to patients with aphasia.

机构信息

Speech Pathology, School of Allied Health, Human Services and Sport, La Trobe University, Bundoora, Australia.

NHMRC Centre of Research Excellence in Aphasia Recovery and Rehabilitation, La Trobe University, Bundoora, Australia.

出版信息

Disabil Rehabil. 2021 Oct;43(21):3003-3014. doi: 10.1080/09638288.2020.1722264. Epub 2020 Feb 11.

Abstract

PURPOSE

Communication disability, including aphasia, is prevalent in the stroke population and impacts service delivery. This study explored the experiences of the multidisciplinary stroke team in delivering healthcare to patients with aphasia.

MATERIALS AND METHODS

A phenomenological approach was used to understand the experiences of delivering healthcare services in the presence of aphasia. Healthcare professionals ( = 16) were recruited across acute and subacute stroke care, with a range of discipline backgrounds and experience. Participants took part in focus groups and data were analysed using an inductive thematic approach.

RESULTS

Five themes were evident: 1) aphasia is time consuming, 2) health professionals do not know how to help, 3) health professionals limit conversations with patients with aphasia, 4) health professionals want to know how to help, and 5) health professionals feel good after successful communication.

CONCLUSIONS

Aphasia disrupts usual care. Health professionals want to help but are working in a non-optimal environment where communication and patient-centred care are not adequately resourced. A video abstract is available in Supplementary Material.IMPLICATIONS FOR REHABILITATIONCurrent hospital systems and ward culture make it difficult to offer patient-centred care to patients with aphasia.Health professionals want to help patients with aphasia but are working in an environment where patient-provider communication is not adequately resourced.As a result, health professionals dread, limit or avoid talking with patients with aphasia.Health professionals need support which may include ongoing education and on-the-job training, and a change in ward culture including key performance indicators focusing on patient-provider communication.

摘要

目的

言语障碍,包括失语症,在脑卒中患者中较为常见,会影响医疗服务的提供。本研究探讨了多学科脑卒中团队在为失语症患者提供医疗保健服务时的体验。

材料和方法

采用现象学方法来理解在存在失语症的情况下提供医疗保健服务的体验。在急性和亚急性脑卒中护理中招募了 16 名医疗保健专业人员,他们具有不同的学科背景和经验。参与者参加了焦点小组,数据采用归纳主题分析方法进行分析。

结果

有 5 个主题很明显:1)失语症很耗时,2)医护人员不知道如何帮助,3)医护人员限制与失语症患者的对话,4)医护人员想知道如何帮助,5)医护人员在成功沟通后感觉良好。

结论

失语症会扰乱常规护理。医护人员想帮助患者,但他们所处的环境不理想,沟通和以患者为中心的护理资源不足。视频摘要可在补充材料中查看。

对康复的意义

当前的医院系统和病房文化使得为失语症患者提供以患者为中心的护理变得困难。医护人员想帮助失语症患者,但他们所处的环境中,患者与医护人员的沟通资源不足。因此,医护人员害怕、限制或避免与失语症患者交谈。医护人员需要支持,可能包括持续的教育和在职培训,以及病房文化的改变,包括关注医患沟通的关键绩效指标。

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