Suppr超能文献

评估教育白板视频在向患有癌症的女性青少年和年轻女性介绍生育力保存方面的效果。

Evaluation of an Educational Whiteboard Video to Introduce Fertility Preservation to Female Adolescents and Young Adults With Cancer.

机构信息

Department of Pediatrics, The Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada.

Cancer Health Literacy Research Centre, Cancer Education Program, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.

出版信息

JCO Oncol Pract. 2020 Jun;16(6):e488-e497. doi: 10.1200/OP.19.00365. Epub 2019 Jan 28.

Abstract

PURPOSE

Fertility is an important issue for adolescents and young adults with cancer facing potential infertility. Egg cryopreservation options exist, but information is sometimes overwhelming. We evaluated a fertility preservation educational video and assessed patient and family knowledge and impressions at pre- and post-video timepoints.

METHODS

We developed a whiteboard video to explain egg cryopreservation to patients and families. The video was evaluated on the basis of patient education best practices (readability, understandability, actionability). Participants were recruited using convenience sampling in oncology clinics. They completed questionnaires before and after watching to assess knowledge and interest. Inclusion criteria were patients age 13-39 years and minimum 1 month from diagnosis. Descriptive statistics, correlation analyses, and mean comparisons were conducted.

RESULTS

The video script read at a grade 8 reading level. Average understandability and actionability scores were below the acceptable standard. We recruited 108 patients (mean age, 27 years) and 39 caregivers/partners. Patients' knowledge about fertility preservation increased after viewing the video. Interest was high before and after, and satisfaction was high for both patients and caregivers. Participants appreciated information on process, procedure, and delivery but desired more information on logistics, including cost.

CONCLUSION

A targeted patient education video about fertility preservation options can build knowledge and encourage discussions about infertility. The video can be used as a model for videos on related topics to provide accurate information in a youth-friendly medium; however, following patient education best practices for readability, understandability, and actionability may increase video effectiveness. Future research should assess how audiovisual patient education material affects patient behavior.

摘要

目的

生育能力是面临潜在不孕风险的青少年和年轻癌症患者的一个重要问题。目前存在卵子冷冻保存的选择,但相关信息有时令人难以理解。我们评估了一个生育力保存教育视频,并在观看前后的时间点评估了患者和家属的知识和印象。

方法

我们开发了一个白板视频,向患者和家属解释卵子冷冻保存。该视频是根据患者教育的最佳实践(可读性、可理解性、可操作性)进行评估的。参与者通过肿瘤诊所的便利抽样进行招募。他们在观看前后完成问卷,以评估知识和兴趣。纳入标准为年龄 13-39 岁的患者和诊断后至少 1 个月。进行了描述性统计、相关性分析和均值比较。

结果

视频脚本的阅读水平为 8 年级。平均可理解性和可操作性得分低于可接受标准。我们招募了 108 名患者(平均年龄 27 岁)和 39 名照顾者/伴侣。患者观看视频后对生育力保存的了解有所增加。观看前后的兴趣都很高,患者和照顾者的满意度都很高。参与者赞赏有关流程、程序和交付的信息,但希望提供更多关于后勤的信息,包括成本。

结论

关于生育力保存选择的有针对性的患者教育视频可以增加知识,并鼓励讨论不孕问题。该视频可以作为类似主题的视频模型,以青年友好的方式提供准确信息;然而,遵循患者教育的最佳实践,包括可读性、可理解性和可操作性,可能会提高视频的有效性。未来的研究应评估视听患者教育材料如何影响患者的行为。

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验